Secondary brain tumour returns again…

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Hi All, 

First time I have written on here having read others comments for a long time. My mum has just been told that her brain tumour has returned for a 3rd time. She was initially diagnosed with lung cancer in October 2017 and had chemo, radio and immunotherapy. Then diagnosed with secondary brain tumour in October 2019, surgery was done, the brain tumour then returned in November 2020 again surgery was completed. We have just been told the brain tumour has returned again whilst the lung cancer remains stable. Mum has been offered stereotactic radiotherapy which she has had once before. It just seems like the bad news never ends and my mum goes through so much. It’s so hard to remain strong. I only have my mum and I really don’t know what I would do without her. It’s just so hard. 

seeing all the messages on this forum and others makes you realise that obviously you aren’t the only ones going through it but it doesn’t stop you feeling like you are on your own as you don’t want to burden others around you.

anyway, as I say first time writing and not sure what to expect. 

Regards to all. 

  • Hi  and welcome to the Online Community. I'm actually from a different group but can say quite a few of us lurked around reading posts before making the leap of faith to actually write something here so well done you! I'm sorry to read of your Mum's diagnosis and what she's been going through. Now is the time to realise you are not alone. The members on these forums are hugely supportive and we all know how you feel whether you are supporting a loved one with cancer or you are the one with cancer. I'm the latter and Macmillan members have been my lifeline, listening to my fear, rants and now I'm here for them as they are for me.

    I'm going to suggest you also join the Family and Friends group where you'll be able to connect with others supporting a loved one on this scary journey.

    It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time. 

    To find more information covering diagnosis and treatments there are pages covering most types of cancers which can be found on our Online Information and Support Section

    The Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.

    Sending you welcoming hugs B xx

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  • Hi MrsBJH. Thank you very much for the message I really appreciate it. I will have a look at the other group you mention. Thanks again, take care x 

  • like you today is my first post, the thing is you are not being a burden, , everyone needs to talk and if you can communicate with people in similar circumstances who can relate to your mum and yourself  it helps.

    its not always easy to talk within your family group and quite frankly most people just don't know what to say. I have lung cancer adeno carcinoma-treated with chemo &RT, then it secondary tumour in the  brain. Completed Gamma Fractions summer 2020 having been given 2 months to live if i didn't act.

    The Gamma Rays continue to work on the tumour for many months after treatment, yes headaches, yes increased Oedema, but i'm still here. loss of independence with the loss of driving license takes some getting used to .

    I know it's all a shock , extremely distressing for all , the help is out there but you have to  ask for it as people /groups/agencies , mum & you should have a dedicated cancer specialist Nurse, i speak to them, they should know you by mums appointments and monitoring sessions.

    good luck Dinger