Hello

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Hi

I was diagnosed with secondary brain cancer in October 2019. I had breast cancer ten years earlier and was given the all clear flyer a lumpectomy and radiation.  Then in September 209 I had a full hysterectomy and t the same time they removed an 8 and a half pound tumour from my overies. It was growing right across my abdomen. After a full body and brain scan they discovered I had ‘scores’ of brain tumours. They said I could not have them removed as there were too many - literally they said too many to even count. Great. So much for them saying I had no signs of the cancer spreading 9 years ago. 
anyway, I am now over a year on from the diagnosis of stage 4 secondary metastatic breast cancer. I was on Palbocilib and hormonal therapies (Letrozole) for a year but new tumours were shown on my yearly scan (several more in my brain nd one in my breast). So they switched me to Capecetibine and since then, I have been told the new brain tumours that grew during 2-20 have gone and that the new tumours in my Brest has gone. Also the tumours in my brain are reduced in size. 

so that’s me. I would be interested to know if anyone out there has had a similar diagnosis to me. Or from my one else on Capecetibine. 

thanks
Bettes

  • Hi and a very warm welcome to the online community

    You sound like you've had a very long time dealing with cancer but it's great to hear the success you've had while on capecitabine.

    I don't have any experiences to share with you but I noticed that you hadn't had any replies to your post yet. I typed 'capecitabine' into the group search bar but only found two other posts which mention it. If you'd like to read them clicking here will take you straight there.

    You might also like to join and post your question in the secondary breast cancer group. If this is something that you'd like to do just click on the link I've created and you can then join and post in the same way as you did here.

    It would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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