My mum

FormerMember
FormerMember
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Hello, I’ve never posted before and only just signed up to this site but thought I would share what my mum is going through. 3 years ago 2017 she was diagnosed with HER2 breast cancer, she had chemo and radiotherapy and we thought that was it and life could go back to normal. The following year we found out that unfortunately the cancer was back but had spread to her lungs and later in the year we found out it had spread to her liver. She was having treatment for this and was offered a trial which she was happy to do, so she went for the scans and bloods ready to start but unfortunately the MRI scan detected she had 3 pea sized tumours in her brain. Chemo wasn’t an option for these so she had radiotherapy on her brain and were under the impression that would clear it away. It didn’t. One evening around 3 months ago she showed stroke like symptoms, couldn’t remember our names, was very confused and not making sense. She went to hospital and they though it could of been a mini stroke but Christie’s scanned my mum on a later date and told us the tumours had grown significantly and there was nothing more that could be done and have her months to live. She was put on steroids for a few weeks and our lives fell apart at that moment. Last month she had another funny turn her temp was 39.9 and she wasn’t making sense again so ambulance took her to Christie’s and put her back on steroids. Highter dose for 1 week then lower dose for life but over the last week she’s had them increased twice from 2mg to 4mg and today to 6mg. She’s spending more time in bed, not always sleeping but resting a lot. We’re all anxious and on edge just wanting to spend all the time in the world with her without doing her head in. It’s just heartbreaking seeing her deteriorate infront of our eyes and not being able to do anything. I’m currently in the process of getting video messages off her friends and family to try and lift her spirits as with the virus at the minute she’s unable to see anyone. Just wanted to tell you my story really. Hope your all keeping well x

  • Hi and welcome to the online community

    I'm very sorry to read that your mum's cancer has spread from it's original site and it's no wonder that you're feeling heartbroken.

    I haven't been in the same position as you but I didn't want to pass by without acknowledging your post. It sounds like your mum is a very lucky person to have such a supportive family and your love for her shines through your words.

    I see that you have joined the supporting someone with incurable cancer group and I hope that will give you the opportunity to be able to express your worries as well as ask questions about your mum's care.

    If you feel that you'd like to speak to someone about how you feel then I can recommend calling the Macmillan Support Line on 0808 808 0000. It's free to call and available every day of the week between 8am and 8pm.

    Sending a supportive ((hug))

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  • FormerMember
    FormerMember in reply to latchbrook

    Thank you so much for the reply, day to day we cope well but every now and again something happens and reminds us of what’s to come and brings us down with a bang. The DN came out today for the first time, think they have been a bit delayed with the covid 19 but she said she will be coming out every second Tuesday to check in on my mum so it’s nice now we have their support. If im ever having a wobble though I may use that number you said. Thank you again for the reply x

  • Hello and another welcome from me 

    I had a brain tumour in 2013 (secondary from kidney cancer) but was fortunate to have it treated by cyberknife.  To say I was gobsmacked when it was discovered is an understatement. I hope you will contact the helpline if you're feeling wobbly, tho having the DN as support as,well is a great help.

    Take care xx

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.