Sister diagnosed with Lung and brain cancer yesterday

FormerMember
FormerMember
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Hello,

My sister was taken to A&E yesterday as she had difficulty with her speech. We thought she had a slight stroke as she has thrombosis.

She had scans and we was told she has Lung cancer and a few metatasis to the brain.

We are all in shock at the moment. She is in Slough hospital and was told that her scan is being sent to Oxford to see if she can have any treatment at all.

In the meantime her speech and confusion was getting worse and they have now said she has an infection around the brain lesions and is now on her way to Oxford hospital to have surgery where they will flush away the infection.

This is all being relayed to me by my niece as I am 100 miles away. I have looked at everything online regarding the infection, but can't find anything other than infection post brain operations. I wondered if anyone could shed some light on this for me please.

I also am trying to get a little bit of hope. I'm feeling at the moment like she is going to be gone in days..... I've read quite a few stories of hope on forums and looked into all the different treatments you can have.

I know I'm rambling on - I would really appreciate it if anyone could shed some light on the infection and anything else please....

For example, if the tumor is not in a difficult place on her lung - could she be offered to have this removed and then have cyberknife to her brain - again if it was feasible? I'm imagining at the moment that they will just say no to all treatment.....

Thanks for listening, S

  • Hi  and welcome to the online community

    I'm really sorry to hear about your sister's recent diagnosis. It's no wonder that you're all in shock.

    I can't help with your questions but I noticed that you hadn't had any responses yet and thought I'd recommend that you also join and post in the lung cancer group. It's a much more active group than this one and I'm sure there'll be people over there who can share their experiences with you.

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    When you have a minute it would be useful if could update your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi @samsczyrk

    who's a member of the Lung cancer group has had brain mets treated by whole brain radiotherapy. I've had one brain met treated by Cyberknife. It seems they can only treat up to a certain number n size by Cyberknife. 

    Hope that helps, 

    Sue

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember

    Hi

    i have just joined this online community and my story is very similar to yours. My Aunt was rushed to A&E this Wednesday and was diagnosed with two brain tumours. They then said these were secondary tumours and she had a primary cancer site elsewhere, after a full body CT scan they found a large mass on her lung which is wrapped around an artery. We do not have any more information at the moment but I’m terrified and wanted to tell you that you are not alone. 

  • Hi  ignore this

    Hi 

    Welcome to the community n to this group in particular. It must have been such a shock to learn about your sister's tumours 

    Pls,see my post above re. ' s experience with primary lung cancer and secondary brain mets.

    Sending u a big hug x

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    Thank you. I will have a look. It’s such a daunting time. 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Mckhay

    Thank you for taking the time to reply, and I'm sorry to hear your news.....

    Hope they can do something for your Aunt. We are still waiting on biopsy results for my sister - it could have come from breast or lung - she had breast cancer a few years back. 

    Thanks again for your thoughts, Samantha

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Samantha

    I hope you get the biopsy results soon.

    My Auntie had her biopsy yesterday taken from her lung. We are now waiting for the results. Such a worrying time but I’m thinking of you and your family too. This all feels like a nightmare for us at the moment that we will wake up from, but sadly that’s just not true.  This virus is also causing such concern and we are no longer visiting her because of the risk. So sad. Stay strong.  Jenna

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Jenna,

    Well I hope you get the lung biopsy results back soon so that your Aunt can get on with her treatment.

    My sisters surgeon confirmed that the brain mets are from the lung, and he is going to operate on the brain on Friday. It's very high risk, but obviously needs to be done.

    Hoping that that goes OK, we will then look at everything we can to fight this lung cancer.

    There are so many different treatments now - I just read the hopeful stories, and look at what treatment they had.

    Targeted therapy is the way to go if you are eligible for it. I am staying hopeful from now on!

    My sister is at Oxford hospital - they are only letting 1 person in after 4 o clock now, but I have a cold so can't go anyway.

    Just hoping that visiting isn't stopped altogether.....

    Try to stay hopeful, research and fight for the best  treatment!

    Samantha

  • Good luck to your sister Samantha for Friday x

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.