New diagnosis

FormerMember
FormerMember
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Hi, my mum had breast cancer 8 years ago,which 2 years ago which came back in her bone, following on from a recent eye test she was referred to an eye specialist. He detected something and requested an mri of her brain.Yesterday we were called to see him, where he gave us the devastating news that it has spread to her brain. Oncology have requested another mri which she is having on monday. They have also started her on steroids and referred her to radiology , we dont know what stage she is yet as not due to see consultant until later this month. Sob

  • Just wanted to say I understand how devastating the news is, but 2 years 4 months on from being diagnosed with brain mets from breast cancer I’m currently no evidence of disease. What I’m trying to say is there is effective treatment available don’t give up hope.

    love and best wishes 

    katherine

  • I agree with  

    I had a brain met treated with cyberknife ( stereotactic radiotheraphy)  in 2013. Primary is kidney cancer.

    It was 3 x 20 mins sessions of very focussed radiotherapy, which -  being aimed directly at the met - doesn't affect the surrounding tissue. The tumour is inactive now- I know this from regular MRIs.

    Hope that helps.

    PS can u get her appointment brought forward at all?

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    I had my gamma knife treatment on Tuesday. There is already a difference. I can read an ordinary print book and don't need to enlarge on Kindle. 

    I'm still wobbly but for some reason this gets better around 4pm - would be more useful if this could be in daylight - but what the heck. So every time there is an advert on tv, I try to walk a hundred steps. It's 75 to the end of the road and 75 back. I couldn't do that last week.

    For years I've had a cold bath in the morning and today was the first time I've managed that in ages.

    These aren't big or particularly exciting things but they are all moving me forward. 

    My brain surgeon is much more positive than my Oncologist ever manages to be. This has helped tremendously this week. 

  • So pleased to hear your news of progress post- gammaknife . Small changes can make a huge difference can't they? Even a change of person eg brain surgeon cf oncologist. I'm lucky both of mine were/ are positive n reassuring.

    Long may your progress continue!

    Sue x

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    It's a really good day and I've taken inspiration from something Gragon said yesyerday about spending too long thinking about dying at the start of the journey.

    I am so sick of being told I'm seriously ill. Sitting here today I feel okay. Bit of a different story if I stand up but I have just made a curry. I think, when I'm on form, my oncologist doesn't find me 'suffering' enough. I think it's partly cultural. And ageist! I'm 64 so should be cotton woolled at home. Hang on a moment, I've got plans .......

  • Sounds very ageist to me. I'm 63 but luckily my oncologist doesn't treat me like yours- instead he's encouraging 

    For instance, I tell him I've a lot of people praying for me and he says " Well, you  do your  bit n I'll do mine" We also wish each other yet another happy new year.

    Good luck with your plans.

    Maybe he didn't approve of the " merry widow" quip?!

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    Certainly didn't. But after 15 years as a carer, I'm up for a bit of fun. 

    I've put myself on an online dating site, and though I don't think any of them will come to anything there's nothing wrong with a bit of online flirting. Don't think I'll tell the oncologist that!

  • Lol

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to Katherine80

    Devastated Sob Well the results are back, several lesians on brain ,mum having 5 sessions of full head radiotherapy then will be reviewed to what else can be offered. Its not operable Disappointed relieved consultant has told me my mums prognosis is 6th months possibly SobSob

  • Hi ,

    So sorry to hear about your mum's brain mets.

    had whole brain radiotherapy, followed by another treatment-  chemo I think?

    Prognosis is always based on statistics n not on the individual.

    What's your mum's primary cancer may I ask?

    That can make a difference too as to prognosis.

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.