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FormerMember
FormerMember
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Hi Everyone, 

Wanted to introduce myself to the group. 

Colorectal cancer,Adenocarcinoma lungs metastasized to brain causing leptomeningeal carcinomatosis.

Hoping to have first treatment of pembrolizumab this Monday..

My best  wishes to all 

  • Hi and a warm welcome to the group. How did your first treatment go?

    Very best wishes 

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

    Click here to see how to add details to your profile. It helps everyone to see a little about you

  • FormerMember
    FormerMember in reply to LoobyLou49

    Hi Linda,Thank you for your kind welcome. All went well, no adverse reactions and back in 3 weeks for the second dose. Best wishes. 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Abuelo,

    I've just been diagnosed with this, even though lumbar puncture showed no cancer cells.  Had MRI scan today, and have a meeting with oncologist who originally treated my lung cancer (back in Oct - Jan this year).

    Got hearing loss in mid'May, then about a week later got double vision.  Maybe we can compare treatments.  Hope all goes well with you xx

  • FormerMember
    FormerMember in reply to FormerMember

    Oh dear, bad news I'm afraid ... been diagnosed with Leptomeningeal Metastases for which there's no cure, they just treat symptoms.  Has anyone else ever come across this?

  • I've not come across this but there are a number of folk on the site - with different cancers and secondaries - who' ve just had their  symptoms treated for years.

    Have you tried "ask a nurse" or the Helpline to get more medical information?

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Just realised Abuelo posted a few days ago with same thing n u talked about comparing notes. S/he' s obviously having some sort of treatment at present.

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.