I've just been diagnosed with this, even though lumbar puncture showed no cancer cells. Had MRI scan today, and have a meeting with oncologist who originally treated my lung cancer (back in Oct - Jan this year).
Got hearing loss in mid'May, then about a week later got double vision. Maybe we can compare treatments. Hope all goes well with you xx
Oh dear, bad news I'm afraid ... been diagnosed with Leptomeningeal Metastases for which there's no cure, they just treat symptoms. Has anyone else ever come across this?
I've not come across this but there are a number of folk on the site - with different cancers and secondaries - who' ve just had their symptoms treated for years.
Have you tried "ask a nurse" or the Helpline to get more medical information?
Just realised Abuelo posted a few days ago with same thing n u talked about comparing notes. S/he' s obviously having some sort of treatment at present.
