Confused is an understatement!!

Hi Toot22

I'm very sorry to read that your mum has recently been diagnosed with lung cancer which has spread to her brain and I know what a difficult time this must be for the whole family.

I can understand why you're confused and hopefully your mum's consultant radiographer will be able to explain what's happening when she sees your mum on Monday.

Your mum should have been allocated a CNS (cancer nurse specialist) who is normally the person at the hospital who your mum can phone to ask questions. If she hasn't been allocated one then she should ask for the contact details when she sees the consultant.

I can see that you also posted this in the lung cancer group and, if you haven't seen the replies, clicking here will take you straight to them.

Do come back and let us know how your mum gets on.

x

Hello toot22 so saddened to hear your mum’s diagnosis and conflicting information must be so so frustrating.I don’t have cancer my loved one dose as your mum but it’s SCLC which is rarest but most aggressive it’s mestasised to different parts of body and brain we’ve been giving such conflicting information apparently can’t have radiotherapy untill cheomathreapy   Has completed but now brilliant consultant who’s thorougher and honest which is what’s needed I do hope things for your mum goes well watching a loved one go through this is so so painful please try at least sometimes to set little time aside just for you look after yourself your mum needs you  

Hi Toot22,

I'm very surprised at what your mum has been told with only a single brain lesion, especially with the confusion. I have had 2 ops on my brain for a single tumour which returned. I also had stereotactic radiosurgery (SRS) at the royal Marsden. At the same time I also have had initially bowel then liver and lung, I was diagnosed at stage 4. I still have liver and lung.

I would definitely challenge what you have been told and push it.

Best wishes

Martin