Confused is an understatement!!

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Firstly I apologise in advance for the long post but hoping someone can shed some light! I’ll try and be brief and to the point

mum has NSCLC ( diagnosed November)

new right sided weakness 

CT scan recently showed 1 brain lesion

Mum went back to clinic today with my sister for all results PET,MRI . Respiratory doctor told them only 1 brain lesion and mum is still curable with radiotherapy.  He doesn’t want to operate on her lung as the tumour is quite large and he will have to take half her lung away and doesn’t think she’s fit enough. Sent her to see another doctor not sure what her official title is, I just know she’s a consultant that specialises in radiotherapy for lung cancer. She has told mum she’s stage 4 terminal . She’s prescribed mum dexamethasone 16mg a day and will see her again Monday. She’s said if mums right sided weakness doesn’t improve by Monday she can only give her lose dose radiotherapy and mum only has weeks left!!

how can 2 different doctors tell you 2 completely different things!!! So what do we believe? I know which I’d like to 

  • Well, if cancer has spread, it's stage IV ( i think ) but that doesn't mean not curable. I have NSCLC stage IV , with mets in lymph nodes and had one big one in brain, had brain surgery to remove it, and radiation. Diagnosed over 5 years ago, and i'm still here!!! Did the onc say anything about chemo or immuno therapy?

  • Hi Toot22, I’m not surprised you are confused. It confused me too, so much so that I couldn’t reply last night, and I’ve been thinking about it over night.  You obviously need clarification on this. It sounds like you have communication with your mums lung nurse, so If it was me, I would give her a ring and say how confused you are by the 2 different diagnoses. 

    These appointments are always so stressful, and I know myself I always come out saying to my partner “did I hear that right”. It was good that your sister was there with your mum, but I think you need to hear this yourself for clarity. 

    Good luck, let us know how you get on x 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

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  • Hi Pet can I just ask did they get rid of your brain met? 
    mums doctor told us today they can’t get rid of hers , only shrink it. I’m a bit confused because I thought they could get rid if you only had 1? X

  • depends where it is i think, mine is gone had surgery, it was front left. So do they only do radiation to your mums?

  • They’re giving more the radical radiotherapy, they’ve said no matter what treatment she has they can’t get rid of it. It’s in the back on the left side 

  • Does she have any symptoms from it? Radiotherapy is good, and it may shrink a lot and will be dead. Fingers crossed

  • Yes she got up one morning and it was like she had had a stroke, right sided weakness. The steroids are helping massively, she’s of 16mg daily of Dex . She’s like a completely different woman on the steroids.