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My partner was diagnosed with a glioblastoma 7 weeks ago, she was sent home with no treatment and palliative care. The lack of care and communication has been terrible with the hospital, now seeking a second opinion, i feel very alone and confused. I...
Hi all. My husband has been diagnosed with a glioblastoma and has had surgery to remove roughly 75% three weeks ago. Has anyone here tried immunotherapy instead of radiotherapy or both? If so where did you go and was it a positive outcome? Many thank...
Hello there. I have recently been diagnosed with a meningioma at the back of my head-my Neurosurgeon or neurologist hasn't commented of the size of the tumour as yet. Nor have they stated on the exact location apart from 'its at the back of my brain...
First meeting following surgery today, so it’s been a bit emosh. Had craniotomy and major debulking on 9 Feb. Surgery and recovery was uneventful - one of my new favourite words- the others are mostly swear words!! As I had been warned, I have a high...
Hi. I'm lost and frustrated and sad and stressed. I can't sleep, can't talk to my doc, even if I could get an appointment because I can't stop crying. I was told in July I have a brain stem glioma. Still no follow up, no treatment plan or any support...
Hi, my mum has been diagnosed with pancreatic cancer . She has undergone an Appleby surgery. She is receiving chemotherapy. As she was complaining a headache, the hospital did MRI which showed a tumour. Because the history of pancreatic cancer, the doctors...
Hi im mandy and I was after any advice about my mum. My mum is 80 and last week they found she had lung cancer which has also spread to her brain. They told mum they wouldn't do a biopsy as her lung could collapse and cause further complications....
Hi. I have recently been diagnosed with a meningioma. It is believed to be grade 1 (slowest growing) and benign. I am a commercial pilot and would love to get in contact with any other pilots who have also had meningiomas to listen to their stories and...
Hi all, I was diagnosed with low grade brain cancer 7 years ago which was treated with surgery, radiotherapy and 12 months chemo. I’ve had stable MRI’s every six month since…until now. Not only is there new activity in the cavity where my original tumour...
Hi all, I hope you are all well. Sorry for the morbidity, my son was diagnosed with grade 3 anaplastic oligodendroglioma in 2014, however, the tumours could of well been present before. My question is about end of life and timelines. I know each individual...
