Hello, My dad had surgery 2 weeks ago and starting soon chimio and radiotherapy. He is 80 years old and never had pain in his life of anything. Please help me out with any information about this incredibly difficult disease, is there anything i could...
I’m living in Australia. My sister had her craniotomy yesterday, I’ve booked my flight and I’m on way over tomorrow to be with her to help her recover. Any tips on how I can help her while I’m in uk? Her speech is quite slow at present which I’m told...
I’ve been living with a stage 4 astrocytoma for nearly two years and feeling more or less ok (the perimenopause isn’t helping but still). I’m still enjoying my life, my family and friends, and have a lot to be thankful for. I do get tired sometimes...
Hello. My son had a seizure out of the blue in May 2023. He was taken to hospital and blood tests done. Nothing strange appeared to be wrong. It wasnt until September that he had a phone call from a neurologist who seemed very surprised that he had not...
Hello, In September my husband had what we thought was a stroke, we went to the hospital and after some confusion as to what hospital we should go to as we live on a border of two County's we went to the smaller one then after 12 hours in a&e and after...
Hi everyone, we were told my husbands tumour came back last March 2021. A year later we are still awaiting an operation that they said he needed a week after diagnosis. We are living a nightmare. We have the GP, our MPs all writing letter to the hospital...
hi all, I’m recently diagnosed so joining up to say hello and join with all you good people.
Hello everybody. I thought I'd reach out and introduce myself. I'm Chris, 37yrs old. a husband, and father to 3 boys. Recently been diagnosed with a Glioblastoma grade4. I've had surgery which they managed to remove 80% of the tumour found. But...
Hello all, I’m new here ano very keen to join a group to gain, and give, support to people on a similar journey as me. I diagnosed in 2019, I underwent an awake craniotomy, radiotherapy and 13 months of chemotherapy. My response to the treatment was so...
My husband has recently been diagnosed with a glioma with enhancement - he is 34 we have a coming up 2 year old little boy. My husband is not wanting to know timelines at the moment but myself and parents have looked and discussed. It just seems a nightmare...
