My son has just turned 21 and four weeks ago he was diagnosed with a rare brain tumour (Anaplastic Oligodendrogliomas). He has had surgery and is in to his second week post surgery. He is recovering well. The surgeons managed to removed approximately...
Hi I was recently diagnosed with a grade 3 astrocytoma and have also had a cranotomy to remove the tumor which I am currently undergoing radio therapy, I am currently not working and am after some help in order to keep my self focused I have currently...
Hi everyone. I had a ependymoma brain tumor in my early twenties. Couple surgeries and multiple radiation treatments later I was told I'm in the clear. This summer I had a routine MRI and new lesions showed up. It's been over twenty years so it came as...
Hi all, I hope you are having as best a day as you can. I am a dad to a beautiful, courageous 18 year old daughter. 4 years ago she was diagnosed with a grade 2 astrocytoma and to date has had 3 surgical resections. We were told that follow...
Hello, My dads just been told that the cancer from the lungs has spread to the brain. Does anyone have any experiences, what to expect, just any advice?
Hi All, I’m new here and to be honest have been avoiding going down the rabbit hole of joining a forum like this since my Husband (51) was diagnosed with his tumour in November last year but as our journey continues I feel like some days you just need...
Hello at the end of June this year I underwent some urgent tests for head and neck cancer which included a CT scan with contrast, which flagged up a 3.5cm acoustic neuroma. I was then send for another “deeper” ct scan (what that is I don’t know)....
Hi my partner was diagnosed with a glioblastoma 3 months ago, she was sent home without any treatment. She has now been in a hospice for 4 weeks as she got a UTI infection. The last week or so she has been crying and wailing none stop. Is this usual with...
My partner was diagnosed with a glioblastoma 7 weeks ago, she was sent home with no treatment and palliative care. The lack of care and communication has been terrible with the hospital, now seeking a second opinion, i feel very alone and confused. I...
Hi all. My husband has been diagnosed with a glioblastoma and has had surgery to remove roughly 75% three weeks ago. Has anyone here tried immunotherapy instead of radiotherapy or both? If so where did you go and was it a positive outcome? Many thank...
