Hi everyone. I had a ependymoma brain tumor in my early twenties. Couple surgeries and multiple radiation treatments later I was told I'm in the clear. This summer I had a routine MRI and new lesions showed up. It's been over twenty years so it came as a shock. I'm waiting for more MRI scans and other testing to see what's next. I joined this group to see if anyone else had experienced this.
Hi Cash123
a warm welcome to the online community. Sorry to hear about all that's been going on.
Ependymoma is not a type of bran tumour that I am personally familiar with. My own personal experience lies in supporting my late husband through his Glioblastoma journey- so an entirely different scenario.
This is a safe and supportive group so I am hoping that some of our other active members have some personal experiences here to help you. Not knowing exactly what you're facing is far harder than knowing so I can empathise with the emotions you are going through.
Please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I'm sending you a huge virtual hug and lots of positive energy.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Thank you. I'm optimistic because I've been told it's a slow growing and not a very aggressive type but there are still risks and concerns. They typically appear on the spine or brain. I'm hoping that catching it quickly will lead to an easy solution. Fingers crossed
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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