Not been here for a while

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Hi all,

I posted a few threads a few years ago in the GBM4 section. However, since a recurrence a few years ago and a subsequent operation and a tissue sample taken, it appears that it’s not a GBM4 at all, but rather an Oliogodendroglioma grade 3 - still cancerous and still terminal but nothing of the severity of a GBM4. So what does this mean for yours truly?

Well, plenty of time left on this Earth (I was diagnosed in December 2012) and have been enjoying life ever since - my wife and I have been on a Caribbean cruise and have bought ourselves a holiday caravan on the west coast of Wales. We have even fostered our two teenage granddaughters, so that must mean we’re doing something right. 

A couple of months ago I reapplied for my driving licence which I’d had to hand in as my recurrence demanded it, and I am awaiting the outcome Fingers crossed so if all goes well I’ll have at least another 6 months driving - wish me luck.

All in all, it’s been a journey of self awareness, of stability mixed with all sorts of emotions, from laughter and tears, but mainly laughter and long may it continue. 

Stu

  • HI Stu

    great to hear from you. Thanks for the update.

    Long may the laughter continue.

    Love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Stu,

    Thank you for sharing this positive message. I’m thrilled for you and your family that it is grade 3 and you’ve had extra years to spend quality time with loved ones doing the things you love! My dad has been diagnosed accidentally finding out he has a ‘ high grade glioma’ with no symptoms and the tumour only around 2cm. No biopsy just through MRI scan, he’s fortunate to be able to go privately for a second opinion and I’m praying it’s grade 3 so we have longer together! Any advice or treatments/ specialists you recommend I’d really appreciate it! I have been exploring immunotherapy and trials for high grade cancer, do you have any experience of these?

    Thanks again for your post and any thoughts would be amazing!

  • Hi HanB,

    Unfortunately I don’t have any experience of alternative therapies for your father. 
    And again, unfortunately (for me at least) I have no experience of private treatment - just the British National Health Service, so sorry I can’t help you but I hope your father will have plenty of time left and my prayers are with him. 
    Good luck,

    Stu. 

    Stu B

  • Such a positive post Thankyou for sharing .  But I’m wondering how could they mis diagnosis all those years ago like that , you could have been living a lot differently these past few years with the diagnosis grade3 more treatable tumour type?     We really are at the mercy of the doctors , that is a bit scary.   Best of luck !