New brain tumor diagnosis

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Hello everyone, I've recently been diagnosed with a Brian tumor. I've had symptoms for over a year now like headaches going all the way down to my right eye ect. Ive had mri scans which has show a tumor. I've seen a neurosurgeon and he has said it needs removing ASAP. I have to be awake for surgery. I'm just wondering I need some positive reassurance as I'm really really struggling at the minuet about the qhole surgery 

Thank you

  • Oh my gosh Graham, I'm sorry but that's awful what she did to you when you needed her the most. How have you coped mentally? It must be really hard plus trying to recover and get stronger mentally and physically 

  • I just don't even know how to prepare my self mentally and physically for the op. I've never had an operation before. I'm glad your on the mend though lovely xxxx

  • Wow that's very very positive isn't it? How are you now? I'm just so focused on getting through the surgery that I don't really think of how I'm going to be afterwards xxxx

  • I honestly had no clue what to expect, I had never had an operation either or a GA, I was having panic attacks before hand because I was so nervous, continual crying, I didn't know what to do with myself. I was told to try keep fit,  so I did walk for around 30 minutes a day beforehand. Not sure if it helped. I was so worried waiting to go down to theatre and they kept asking why I was crying so much, I said please don't ask how old my children are otherwise I won't stop! So they changed the subject to holidays and that's the last I remember. I certainly didn't feel brave at all! When I came around in ICU , I was sick, but so drugged up, I felt no pain at all. My left side had gone really weak but I could still just about walk, I was expecting that as the surgeon had told me it was likely to happen.  I think the only advice I can give is like everyone else says, one day at a time, once you've got over the surgery there will be another worry, and then after that another. I'm trying so hard to be positive but on the inside I'm so petrified for my children's future it's tearing me apart. In the end do have to think I'm doing all this to have as much time with them as possible. Also going back to the op, I then had a blood clot in my leg, which is common but tricky to manage after brain surgery, so try move around as much as you can afterwards and maybe ask to wear the stockings during surgery? I don't think mine were put on until after. I really hope that reassures you a little, always here if you want any more information. 

  • Thank you CarrieA for your reply. The whole thing freaks me out. Its the walk to theatre that I don't think I can handle and I will 100% want to walk out of hospital. Can you be sedated or anything where you don't fully know what's happening? Before op? Xxxx

  • Same! I said I can't do this if I see anyone in scrubs, any surgical equipment etc so they took me into a side room to have the GA first but I'm sure they could sedate you a little if requested. Who's your surgeon and what hospital xx

  • It is very hard she was the one for me , had few other girls friends. But this one took my love been married for over 30 years, 3 lovely children. Because of memory it must have been hard four years especially with that diagnosis three months. I don’t know what she went through, all I remember she loved getting her nookie, so part of me thinks this he ten years younger, and she tells everyone that it was my fault using my loss of memory to her advantage. So it is hard but getting my strength back gives me hope, plus looking to move will help with trying to make a new start. The cancer has robbed me of so much driving, etc so with the new home I’ve got start a new life. Thank Gs1723 for reply. 

  • I hope you’re surgery goes well and you get a good outcome.

  • Hi carrieA thank you for replying. I'm having my operation at Sheffield hallamshire hospital. I honestly can't even pronounce my surgeons name as awful as that sounds. He seems really nice and confident about my operation though xxx

  • Hi one2many thanks for replying. The only advise I have got is keep going.. keep going strong you will fight this and you will get through this! Nothing is your fault at all so don't blame yourself. You need to be strong for you and your children. I hope your ok