Brain tumour stage 4

Hi yes it's a g4 glioblastoma,  discovered after a seizure out of the blue in October. My husband is the same, just the short term memory issue too.  We had a very normal family life, nothing flash!  he retired early last year and we just bought a holiday home on the coast for weekends as we had decided life was too short to wait for everything! Little did we know how true that was.  I've also got 2 stepkids 21 and 23, although we have told them the process we haven't shared the severity of the situation.  Its a lonely existence sometimes but just taking it a day at a time.  Hugs x

We are in Aberdeen, are you in scotland?

yes living for the day is the way forward…. My husband is away to turn 51 very young, our life in front of us, now shorter than we hoped x

Hi we are in Yorkshire.  I'm 51, hubby is 58.  We also feel that life is being snatched away way too soon. Its so unfair, I can't begin to comprehend what life might be in the future.  We are trying to do as much as we can and stay positive.  I think the uncertainty is so hard to deal with - especially as this form of tumour is very unpredictable! Xx 

I know, but I have spoken to people with the same tumour 7-10 years down the line….. it can happen. I know we want longer, I can’t imagine my future without my husband….. let’s just live for today, it’s all we can do xx

Hi Jobo, he's doing ok. Completed Radiotherapy and Chemotherapy and after a break through December he started the 5/23 Chemo tablets yesterday. I was anxious because its such a big dose but he's doing ok and still doing his physiotherapy exercises. Taking one day at a time and holding onto hope he'll be a long term survivor. His MRI is going to be between cycle 3 and 4 then I suppose we'll know more x

Hi I'm so pleased to hear he's doing well.  I firmly believe having a positive attitude is so important. How are you coping? I'm naturally a positive person but do find myself having random cries   like you we are holding onto hope for beating the odds! I've been looking at trials and alternative treatments too.  Hugs xx

I'm doing ok considering, good days and bad days. My husband has just finished his 1st Chemo 5/23 and it has made him extremely tired. He's sleeping alot. Is this normal? Noticing subtle changes to w he is. He was the same after surgery but he's definitely changed since Radiotherapy and Chemo.

Hi, my husband is in the exact same cycle as yours. We are away to start cycle 2. My husband’s personality has changed a little, he’s definitely not the man I married…. It’s heartbreaking. Scott was just needing a 20 min nap during his week of chemo, then he has been ok. Dreading this Fri when he has to start taking the tablets again. Scott takes his at night, seems to help with sickness. Pm me anytime x

Hi my husband starts his on 30th January, I dreading it & the uncertainty.  He's taking chemo tablets for 6 weeks continuously.  He's got to take them 1 hour before his radiotherapy which is also 6 weeks but Monday to Friday.  He gets tired now so I'm not sure how he is going tp be.  Everyone says it's just a case of wait and see.  For someone who likes a plan that's challenging! 

Hugs xx

They told us that fatigue was one of the more common sude effects and not to be alarmed. I haven't seem any major changes in his personality,  hes a bit more subdued when we are with other people but otherwise OK.  I know how quickly things can change though! X