Brain tumour stage 4

Hi trac

My son had a brain tumour and we noticed he just wasn't the same character anymore....we put some of this down to the drug DEXAMETHESONE.....its a steroid and can cause different emotions in the patient taking it.

Speak to his CNS it may help.

Xxx 

Hi. Unfortunately I’m the same. Husband is 50 just diagnosed. I have a 18 and 15 year old. 
it’s just heartbreaking 

Hi S Moss My heart breaks for everyone dealing with this disease. I totally feel the same. We planned our future and where we were going to retire in years to come. My husband is my best friend and my soul mate. I don't know how I'm going to manage without him. Our son is 15 and in his last year of comp. My husband was diagnosed with a brain tumour on the 1st August and underwent a craniotomy on the 2nd September which was successful at removing it, however we received the results of the tumour type last week to be grade 4 Glioblastoma. I'd read alot on brain tumours since his diagnosis so I knew how bad it was and that there is no cure. He's going to have Radiotherapy and Chemo in the next month as it will buy him time. I'm scared and worried and sad but there's nothing I can do to change the cards we've been dealt. We must make the most of each day and try to be hopeful. Its very hard to stay strong. We have to stay strong for our kids. Please stay in touch, we can all try and support each other xx

Thank you for getting back to me. We are at exactly the same point in our awful journey…. I’m in the garden right now looking through all our valentines cards, it’s just unbearable. We should definitely stay in touch, try and help each other and any tips etc to get through the day. I’m in Aberdeen, the hospital has been great, Scott starts his treatment on the 17th. Are you both still working? X think we can private message on this site? 

Hi S Moss, my husband Richard went sick in July as he could hardly walk. I have my own dog grooming business which I'm trying to reduce to 2 days a week. We were advised to activate a DS1500 form which we are expecting a call about on Tuesday entitling us to higher benefits. I'm not sure how you private message on here. I would ask if Scott could go on any clinical trials. CBD oil Sativex is supposed to help shrink tumours. A trial was started in Leeds this year. We haven't received a prognosis and I don't think I want to know. Its such a horrible situation to be in and some days it really hurts. Going to fill the fridge and cupboards with cancer beating super foods and will try anything. X

Just worked out PM. Click on name then plus sign

Same, our diet has definitely changed x

Did you stop or change the steroids at all? Did it make a difference?

Hi I just wondered how you and your husband are doing and how he found the treatment? My husband starts his end of January, I've got an 11 year old who just knows dad is poorly. My heart breaks at what lies ahead for us all.  Such a horrible disease. Lots of love xx 

Hi, yes this is a horrible time for us all, I’m heartbroken. My husband is ok, acting normal apart from a bit of short term memory loss. He is on cycle 2 of chemo and coping well.

How is your husband? Does he have the same tumour as my hubby?

we have a 16 and 19 year old and the know everything that is going on, we are very open with them, it’s the hardest thing I’ve ever done is sit and tell my children their dad won’t grow to be an old man. Xx please keep in touch