Brain tumour stage 4

Hi, yes it’s impossible to plan anything. When my hubby went through the 6 weeks of radio and chemo he was very sleepy and lost his appetite.

sending you lots of hugs x

Hello Trac

Welcome to the site, I am also a new member in very much the same position as you have unexpectedly found yourself in.

my husband retired on the last day in July and on that evening he was showing signs of being unbalanced and using his cutlery differently. 
Seeing that i had him taken to hospital and checked him out only to find that following scans two tumors were found. He immediately went on steroids and somehow they seemed to work and he started to regain his balance and coordination a lot more.

he had biopsy taken and was in hospital 2 days and we were then told that his tumors were front focal G4 and inoperable.

he has had his course of radiotherapy along with trial drugs.

I can see each day how hard he is trying to deal with this disease and he at the moment is  aware of all I do for him in a 24 he day. 
i am 65 next month and he was last October. 
It is hard keeping up with all the appointments etc, and there never seems to be enough hours in a day as they all roll into one.

i am looking into getting some help or sitters in because I am afraid and so is he of being left on his own due to the start of seizure. 
No two days are the same and as much as I try to do things in routine he changes to goalpost. 

The love of my life has lost all interest in things we did together and he is no longer able to do much for himself safely. 
I can feel your emotions dear. 
we are not alone, sometimes it is easier to express your feelings and fears to someone you are not connected to and there’s enough of us out there who can relate to you and your husband and what you are both experiencing is an unplanned journey which can take different directions.

Your only human and we can only do our best that’s all. I know the biggest hurt is seeing the person you love changing before you. It’s heartbreaking I feel it too. Unless your in the situation or have been in this situation no one else really understands.

Trac please keep talking and stay in the moment and try not to think too far ahead. That’s what I say to myself and my husband. 

Please try to get all the support available and keep in touch 

best wishes x