Hi,
Has anyone gone on to have a baby after diagnosis (you or your partner). My husband was given 3 to 5 years prognosis in 2015. He has an AA3 and had surgery plus radiotherapy. We are both 30 now and wanting to start a family. I know how scary this must seem and the worries that go alongside it. At the moment he is doing well just mainly fatigue sometimes.
Has anyone gone on to have children?
Katie x
Hi Katie
I noticed that your post hadn't had any replies and thought I'd pop on to see if I could offer any help.
If you type 'trying for a baby', or something along those lines, into the search bar in this group you'll find any previous posts which mention this. I don't know if any will be relevant to you but you could have a look through them.
Another avenue to find information is to post your question around having children while your husband has a brain tumour in the ask a nurse section of the community and one of the specialist nurses will aim to reply within 2 working days.
x
Hi Katie!
My husband was diagnosed in April 2017 and we just had a baby in June 2020. I'm not going to lie, many tears have been shed at the thought that he may not see her grow up to become a young lady, but then again... He may. Then again, I may have an accident. Or he may. We decided we still had to live, we could not just wait for the worse to happen.
This little lady is now the sunshine of our lives. I take on the nights fully so he can still get the rest he needs to stay healthy and seizure free, and I nap during the day. Now the Muppet sleeps well at night so we're doing great.
He did get his sperm tested before, just to make sure he was healthy (turns out, his swimmers were even healthier than the ones we froze before treatment begun)
All the best xx
Hi there,
I was diagnosed with a grade 2 Ependymoma in 2013 which they could only partially remove, so I'm stuck with the possibility of it growing anytime. It took us some reflection and time, but since there is no prognosis for me we had our son in 2015 and my daughter in 2016. We've been lucky that my tumour has remained stable but the possibility is always there. I have a blog if you want a look www.myfaultybrain.co.uk . It was difficult decision but if something happened to me tomorrow I wouldn't regret a thing. Best of luck. X
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