Meningioma diagnosis

Should be plenty out there. The meninges are on the surface of the brain rather than buried in the deeper and more critical structures. There is always a risk with neurosurery, but as brain tumours go, this is a good diagnosis. Some googling I'm sure will provide more good news stories

Hi Bee1956

a warm welcome to the online community. Sorry to hear about your partner's diagnosis. No diagnosis is nice, they are all scary but benign is definitely a positive here. 

My personal experience  lies in supporting my late husband through the three years of his stage 4 brain tumour journey so an entirely different scenario.

This is a safe and supportive community so please reach out here anytime. There's always someone around to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed . You're not alone. We've got you and I'm pretty confident that one of the other members will be along shortly to share their more relevant experience with you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

for now though I'm sending you a huge virtual hug and lots of positive energy.

love n hugs

Wee Me xx

Thank you SO much!

Hi, I had/have a meningioma that was found in July 24, it was an ‘en plaque’ meningioma that they reckon had been growing for 30-40 years ( I was 56). I was having pins and needles in my arm and my wife rang 111 (I as a man, of course poo-pood this course of action). I was blue lighted by ambulance (they thought I was having a stroke). An MRI and CT scan later and the stroke consultant informed us that the good news was it wasn’t a stroke, but she didn’t know what it was. 

long story short, 5 months later I had a craniotomy to debulk the 83mm x 35mm x 15mm tumour.  I woke up from the operation and knew who I was and recognised my wife (I had been warned to expect anything from death, to paralysis, cognitive deficits, memory deficits, vocal deficits etc,etc).

As it was I couldn’t move my right arm and leg. After 2 or 3 days I was able to move my right thumb. I was then an in-patient in an intensive 6-week rehabilitation program learning to walk, feed myself, tie my shoelaces. On the second week I was shuffling around the ward on a zimmer frame and the next week I was using a walking stick and by the end of the 6 weeks I was walking on a treadmill for 20 minutes. The occupational therapists and physiotherapists and even the neuropsychologist were all brilliant.

i was discharged at the end of January this year and the community physiotherapy team had a 5 month wait, so we went privately with a neurophysiotherapist (not cheap at £150 an hour).

I was signed off work for 6 months. Then I had the bombshell news that a nodule in my lung found as a result of the brain tumour was indeed stage 1 lung cancer, found early, and I had a lower left lobectomy by robotic surgery at the end of April.

the brain tumour has left me with epilepsy (in the form of focal seizures), which is under control by 1g of Keppra twice a day. I’ve had a few seizures roughly monthly which we e worked out are being caused by extreme tiredness and dehydration.

If it wasn’t for the brain tumour then the lung cancer wouldn’t have been found for 3-4 years, I’ve made an almost full recovery, I’m back at work, and we’re stronger as a family.

Gosh your story is incredible and very heartfelt! I hope you are making a full recovery now. 

Thank you for sharing your incredible story

Update - partner had brain surgery all went well.  biopsy is graded 2 atypical.....

Every day is a blessing