I am 51 years old and was seen over a year ago in the community for a hearing test after noticing I could not hear in my left ear. To my shock I came out with hearing aids and a referral to ENT due to huge differences in ears.
Had my appointment just after Christmas and consultant advised MRI.
During MRI they pulled me out and stated they needed to do contrast, I knew then something was up. Recalled within two days for results. Consultant doing a referral to be seen as soon as possible. It’s been a rollercoaster of emotions despite reading up about acoustic neuroma.
I was told on 20/01/26 so still digesting. In a way I feel relieved as it explains quite a few symptoms. I would be grateful for any guidance or shared experiences.
Hi Janiec2a2fe
a warm welcome to the online community. Sorry to read about all that you've been going through.
My persona experience lies in supporting my late husband through his stage 4 brain tumour journey so an entirely different path to yours. I've taken the liberty of looking up some generic information for you from the main website. here's the link Vestibular schwannoma (acoustic neuroma) | Macmillan Cancer Support
This is an active community so I am confident that someone with more relevant personal experience will be along shortly.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I am sending you a huge virtual hug and lots of strength
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
