Hello, this is my first post in the specific cancer blog. I had surgery on rectal cancer stage III and the chemotherapy CAPOX. The six hour operation went very well and my bowel symptom is recovering fine but the after effect of chemotherapy is the sticking point......I was the unfortunate patient who experienced a string of side effects one by one from throat spasm, palmar-plantar, defect on eye sights, bladder effects, blisters and bruising, not to mention of common diarrhoea and sickness.......
I am suffering from post chemotherapy such as peripheral nephropathy and blisters; these blisters can get as big as a ping pong ball!!!!! I was warned by the chemo doctor that it will take six months to recover from CAPOX after the end of treatments. Whether I received a wrong dosage or not is not what we expect to know because these drugs affect differently from who you are.
The blisters come and go but my peripheral nephropathy is 24/7 and I ran out of gloves which I can buy when the cold weather arrives. No one can tell me how we should treat this condition. The worry is how long this condition will continue to end of my life???? How does this condition affect me later. I do question why the hospital who gives the chemotherapy not to consider the cure of side effects. I am not complaining, I am not the sort.....I am grateful to the NHS for saving my life.
It would be good if I can share some of you who are going through a similar situation. I would be grateful. Thank you.
Hi Wallingford and a warm welcome to the bowel page. Yes peripheral neuropathy is unfortunately a long term side effect of capox. - if you type it into the search box at the top of the page and then filter on the right for bowel cancer then you’ll see a lot of previous posts.
It can improve over time but mine has never completely gone although I’m quite fortunate in that it’s just left my feet feeling a bit hot and numb - like they’re permanently sunburned. I’ve attached a link to a thread below which also contains a link to an article about PN
Take care
Karen
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