Hello everyone. I hope everyone is doing well, best they can be during their journeys so far.
I am completely new to this forum, and to be honest, never in a million dreams imagined to be writing this. However, here we are. I am quite unfamiliar to the names, of the treatments, procedures etc. so I do apologise for quite a vague description of our current status. My mum, is early 50’s. She had some mucus upon passing stools for a couple of months over the Summer this year, she suspected bleeding piles or something similar. She did also have some stool changes, more of a lose type from what she’s said. Other that, nothing. Infact she is a picture of health, physically fit and very active. She had a routine FIT test come back normal around 18 months ago. After the ongoing mucus and stool change, she managed to get an appointment at the Gp September & referred for another FIt (positive this time with a reading of 49) then had the colonoscopy shortly after. She was told there was a rectal tumour discovered quite low from AV. -5cm roughly. (Highly likely cancerous but no confirmation until biopsy come back) This was devastating to hear, we had really thought & hoped that it could have been something less sinister. However we were not too concerned as we had false hope in that the report stated that this mass was a tiny size (mm) I suspected there may be an error in this as it seemed to not add up - we looked into things online & everything pointed to a very early stage of this was actual cancer & very treatable, depending on other factors. My mum attended a CT & MRI & awaited to hear back from the MDT meeting. They phoned her to come in for an appointment & this did ring potential alarm bells being so soon. At the meeting which was very soon after the meeting & call, my mum was told that yes this was cancer, and unfortunately there was indeed an error on the colonoscopy report regarding the tumour size. It was actually cm not mm & therefore around 4 cm I believe. Not only that, but they saw a spot on liver and lung, only 1 i believe but still not what we wanted to hear. We spoke to a lovely Nurse, who answered some questions for me, she explained there looks to be some node involvement around the tumour area but not sure of how much / what extent until she has a further scan. PET and MRIs booked now, just waiting. The nurse advised the spots are considered suspicious however could be something else, either way, mum will be starting a mix of chemotherapy & radio, hoping to shrink rectal tumour & hopefully surgery to remove. My mum is very positive in her mindset, which is great. I am showing positivity around her but inside I feel destroyed by this news. I feel so sick, terrified infact. Waiting for the diagnosis,I started reading on here as the other stories have been so helpful - informative & reassuring, however I have found the reality of possible outcomes also very scary & as an anxious person anyway - well it’s just in over drive now. I will remain positive & strong for my mum throughout whatever lies ahead. Please, any input positive stories / experiences would be truely appreciated. & thank you for sharing. This forum is amazing. I just signed up following the recent diagnoses & appreciate everyone’s effort in contributing to the forum, I wish you all the best in your situations & wish you all the best outcomes possible. Sending love & hope to you all.
So sorry to hear your Mums diagnosis. A tumour was found in my bowel during a colonoscopy. I am having aromatherapy starting tomorrow to try and shrink it so I can be operated on. It is a very worrying time but please try to stay positive . I found the waiting was the worst time but hopefully it will go well for me tomorrow. Love to you and your mum. Take care
Hi it’s normal to be anxious my mum was diagnosed with cancer 2025 Jan full hysterectomy then as she was going through her treatments my husband was diagnosed with rectal cancer … it’s hard staying positive but it’s best for your mum come in here for a cry or ask anything xx
Hello, & thank you for your reply. I’m so sorry to hear of your diagnosis & I really hope everything goes the best it can for you with your new treatment starting tomorrow. I will try my best to keep positive, my mum is just so brave it’s unreal, wish I was stronger like her. Sending you love & best wishes for your journey ahead ️
Hello, thank you for replying. I’m also so sorry to hear of the diagnoses within your loved ones. That must of been awful very difficult time for you all. How are they both doing now? & how have you coped? I will try my best to show positivity around my mum, I just cry in bed, walking around on my own or wherever I can in private! It’s tricky as I have 3 children of my own and I’m also trying to act as normal as I can around &!l for them. I have a supportive partner, but he sadly lost his dad a few years ago following a battle with cancer also. Thanks again, and all the best to you & your family.
Hello Keeping Faith,
I’m sorry to hear of your Mum’s diagnoses. It’s a shock and your mind goes into overdrive. Pleased to hear your Mum has a treatment plan now and it’s great she has a positive mindset. At the beginning I feared the worst and looked on here for positive stories and tried to keep a positive mindset which I truly believe helped.
So just to give you a positive story and there are many on here and others who have left the forums and got on with their lives.
I was diagnosed in late 2020 (at age 64) and feeling healthy, with 5cm tumour near the anal verge. This was after negative fit tests and no real symptoms until 2020 when I had a bleeding episode. Referred for colonoscopy where I could see there was something there that shouldn’t be and was told at that time it was probably cancer. MRI & CT scan followed quickly and I had surgery (LAR with loop ileostomy) in early January 2021. This was followed by 5 of 6 sessions of chemotherapy (FOLFOX) as lymph node involvement. Only 5 of 6 sessions completed due to sever proctitis. Ileostomy reversal in March 2022. I had other issues connected with leaking anastomosis which lead to further surgery and a diagnoses of sever BAM but that was not to do directly with the cancer.
Chemo has a bad reputation but the thought of it is often worse than it actually is. Although it’s not always plan sailing it’s doable in most cases – just tell her to be kind to herself. Arm yourself with as much information as possible; take each day as it comes, there will be good & bad and look after yourselves. I think it’s often worse for those closest to you than going through a cancer treatment yourself. However, knowing you have people upbeat and rooting for you help immensely.
I continued with the 5 year surveillance programme of colonoscopies, CT scans and blood test which all came back clear. In July this year I was signed off. I feel fit and healthy, have plenty of energy and enjoy life.
Please keep us updated.
Very best wishes
Net77 XX
Hello Net77, Thank you so much for taking the time to reply, share your story & give supportive advise. It really is comforting to hear the positive stories, sparks some hope. I am so pleased for you to have gotten the all clear this year - that is wonderful news. My mum is a very strong character, she does not show her upset, or worry but I know she must be. Depending on the upcoming scan & results I think the next step is starting the radio & chemo therapy. Iv read mixed reviews on the intensity of symptoms / side effects, also the ability to shrink tumour size etc. so it will be a waiting game to see the effects, hopefully we get a positive response. I still cannot believe this is happening to be honest & the idea of someone you love having to endure all of this is just torturous. Fortunately my mum does have a great support network, and I can see that is encouraging her. Thank you for your time in coming back to me it is really appreciated. It is lovely to hear you come through the other side of it all in the end & now all clear. I will keep you updated on our situation.
Take care, sending love & best wishes.
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