My Dad 66yr old with bowel cancer stage 4 with liver mets

Former Member
Former Member
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Hi to all out there! I feel like I have lived on this bloody computer since my Dad got diagnosed 2mths ago!  We live in New Zealand, and are trying to get a grip of what is going on and would love to here of positive stories from anyone else going through the same thing! 

My Dad has always been a fit and healthy man.  He was concerned with a lump he felt in his tummy... after testing we found out this was liver mets from advanced colon cancer!  He has been tender in his tummy, but not in pain at all.  He started chemo 2 cycles ago, with xeloda tabs and oxaliplatin.  I am worried that living in little old New Zealand that my DAD may not be getting the best treatment, that there maybe better things out there!  He is a fit man and has a better appetite than he has ever had, so we are hoping all of these factors will make him respond well to the treatment.    I would love to hear from you all x    

  • Former Member
    Former Member in reply to court

    haha ohh ok i see. maybe I'll try to do both next year! anyway glad i could be a help in your sons homework! ;) x

  • Former Member
    Former Member in reply to Former Member

    Jacqui

    Been thinking about you a lot. How are you and the boys coping?

    Take care

    Jackie xx

     

  • Former Member
    Former Member in reply to Former Member

    Jackie, I have sent you a private message but I am finding it so hard, much harder than I ever imagined.  It seems to get harder each day and how I am ever going to manage I really don't know.  My boys are heros and being so brave but I am struggling with my grief and I don't know how to manage them.

    I also hate this new site.  I cannot find my friends or groups that I want to join and I am just managing to find this tread.

     

    Hope everyone else is ok.

    Jacqui

  • Jash, I have been thinking of you too and feel lost for words. You had already been through so much.

    Jules is trying to start a thread on breavement but I think people are struggling to connect with groups.

    Just want you to know that we are still her for you.

    I noticed that Ann has had to undergo a forced house move  and is out of communication at a difficult time. So just sending some love to you and Nev, just encase your able to access a computer.

    Love to all enduring,

    Court

    Helpline Number 0808 808 0000

  • Former Member
    Former Member in reply to court

    Hi.  Well I am still here.  Not getting any better but have now done 2 weeks and 5 days.  Take each day at a time.  We had the funeral on Friday and what a wonderful day we had. ( We had a party as instructed by Al in a marquee in the garden)  I felt so guilty at the end of the day as I smiled and laughed so much with so many friends.  over 200 people turned up and it was a very lovely day for a very lovely man.  I ordered him a coffin from "colourfulcoffins.com" and we had the one called Fishing on the River, it look terrific and everyone smiled at it.  We tried to have a celebration of his life and I think it worked.  It is afterwards when you sink......

    Yesterday was terrible.  I asked to be left alone for a day and I think I cried for 90%.  I think it did me good but I felt so tired by the end of the day.  Today was better as I spent the day with my sister who is over from Oz and I have my brother here tonight.

    I hope everyone here doing ok.  I think of Ann, Court, Jules and Jackie so often.  Wishing you all well. Take care

    Jacqui

  • Former Member
    Former Member in reply to Former Member

    Hi Jacqui, nice to hear from you.  Al's funeral sounds like a fitting celebration for a wonderful man.  Well done to you for respecting his 'party' wishes and even finding a smile...  When we had Dad's celebration of life, it seemed so unfair that he wasn't there to enjoy it, though I knew he was smiling.

    Jacqui it's such early early days for you, and taking one day at a time is about all you can do at the moment, if only there was a 'fix'.   Take comfort in your boys, and friends around... just take little baby steps, there is no time frame for anything, just do what feels right.   As I posted on another site, a friend of mine said, 'Grief' is the price we pay for love...  well if that's the case I wouldn't have it any other way xxx   Be kind to yourself Jacqui.

    Ann, I hope the shifting is OK... So what you don't need at the moment.  Court a big hi to you and your lovely Mum x

               

  • Former Member
    Former Member in reply to Former Member

    Hi all hope everyone is ok

    Everytime i come on this site i end up crying and feeling sad! but its sort of cathartic so i dont mind. i am feeling it for all my friends who have lost someone coming up to this time of year is so difficult. but hopefully we will have the good news with the bad news, sure due for some good news soon!

    there is a young girl who lives in our village who is 16, the 'charlotte booth appeal', her family are trying to raise 125k to have proton therapy to help cure her sarcoma..it seems an awful lot of money when we all know many drugs to patients are restricted and not everyone can raise that amount..but good on them..i had to give something i couldnt live with myself if i heard in the news shed passed away and theyd not been able to raise enough. i hope there is a happy ending there!

    hope you are coping ok jash, the no mans land from now till xmas is terrible, just have that glass of vino whenever you fancy it! (but not too much obv!;))xxx

  • Hi Wriggles,

    Hope your ok. We have had our share of sad news and I too hope there is good news to follow.

    Hope the little girl gets her money. What an added strain for her and her parents.

    It is such a painful journey and gets amplified at this time if year.

    Thinking about you and Jash too.

    Take care,

    Love Court

    Helpline Number 0808 808 0000

  • Former Member
    Former Member in reply to Former Member

    hi Jules

    You can also get fortisips as a diluted juice rather than the milk my son often gets these when he is in hospital as he can not bare the milk ones !! xx

     

  • Former Member
    Former Member in reply to Former Member

    Hi all, I hope everyone is doing OK.  Wriggles, always love getting your input on this thread!  wow,how sad, a 16yr old... life can be so cruel sometimes!  Amazing how especially in a small community that something like that can bring everyone together and bring out the good in all around!  I wish them luck with getting to their target! 

    Hi Jash xxx     Hi Ann xxx     Hi Rhiannon xxx    hi Court xxx and to all others xxx