Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Les retired early after the bungalow was sold as said what is the point I hate the job. He worked at south tees hospital as a senior buyer. I just said if that’s what you want to do then do it. I am still working from home for a consultant. I still can’t believe it. We bought a motorhome so we could go out and about and yet again guess what it was used once. It is on the garage now. Daughter packed her job in as we had the girls because of infections etc and les not being well. It has a knock on effect as you know. 
    it is so sad that they retired. It will hit me again next week as he is usually not well after this chemo. Dreading it as there is nothing I can do. 
    So so sad jay went so soon and not enjoy his retirement. Jkee is really not sure what she is doing at the moment which is understandable. I don’t have many friend one in Dorset and one in Australia. The other friend well what can I say. I am quite a recluse but welcome anyone who comes xx

  • Hi everyone I am sorry after Simon passed away I was angry the 2 weeks  were horrific and I just wanted to wipe everything away after I spent the week in the hospice. The anger has passed to heartbroken tears and I just want to say thankyou to everyone on here for 2 years we have all supported one another and have become friends but it looks like I will be moving to support after a loss. I pray you all carry on fighting for your partners I would do it again in a heart beat love to you all xx

  • I am so very sorry for your loss. Thank you for your kind words of support and I pray you find the strength to get through this horrendous time. You did Simon proud xx

  • My sincere condolences to you Jkee, so sorry to read Simon has passed away.

    I have followed you & Patty & Misprint & Tory on this horrible roller coaster of this vile disease.

    My husband was diagnosed early 2022 had Chemo Radiation,  Apr , chemo again,   all clear, and came back in his liver.  He had 50% removed last October,  thought it was all clear  to find its back again with further spread.

    My hubby is back on chemo  again and it's brutal.    

    I cannot imagine the pain your now feeling .   

    Please look after yourself .

    I

  • Oh 6 grandchildren. Just when you think it is safe just like les when he had his two ops and next scan back in liver lungs and adrenal gland. Which chemo have they put him on xx

  • He is now on Folfori & Panitumumab.  Back next week for another ct & mri to see if this treatment  has stopped it spreading .   He is amazing , he never complains on how the last 3yrs have been.  We know his treatment is no longer curative, pallative  chemo, to give him more time, until it stops working.

    I feel for everyone diagnosed with any type of cancer,  it's terrible for families affected. 

  • Just the same as les. He is on lonsurf and this horrendous but never complains. Fingers crossed for you both xx

  • My deepest condolences jkee  on you and your family’s very sad loss

  • I also followed these stories for the past 2 years

    our story is similar to yours my husband was diagnosed October 22 radiotherapy and chemotherapy followed by APR surgery in April 23 all clear 

    April 24 it was back in the peritoneal not operable palliative chemo  to get more time , and it is brutal !! 

    he is still on chemotherapy and it is at the moment keeping it at bay , although the last 2 lots had to be cancelled because his got cellulitis in his leg which is finally clearing slowly so we are hoping he can have his chemotherapy the end of next week,  not that he wants it but the risk of it spreading more is too great . 
    my best to you and your husband on this awful rollercoaster!!!!! 

  • Hi  

    So sorry to hear that but I understand . Sending you a friends request .

    take care ,

    Court 

    Helpline Number 0808 808 0000