Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Hi Helen sorry for the rant I am sure you still feel the anger on the field I just let the flood gates open felt better after no one saw me. It's weird when Simon went in in December 2022 everything from that moment was a emergency no time to think no waiting involved just was in a bubble went with it. Today popped in local urgent care used to be our hospital to pick up the prep where he had colonoscopy last time the nerves came felt sick just wish we didn't have to wait  but we will be fine. I wear my heart on my sleeve so a bit of a crier in private tell any one everything where as Simon sits with his emotions will not talk thankyou for caring when you properly feel awful us going over this when you and Vicky will want to forget love to you xx

  • Rant away anytime

    Heen x

  • It's what this forum is for. Can't begin to imagine what you are going through. As I have said I wish you both well on your outcomes. Stay strong.

    Vicky xx

  • Just scream, come on here and really vent.  When walking the puppy talk to him cry as they can’t answer you back. I can assure you Jkee I feel like that and then get engrossed with the bloody stamps or play a game on my iPad. You are not an awful person just frustrated etc like Helen says. Every morning I wake up a little like that thinking another day not doing anything but worry etc etc.  I hope tomorrow you feel a little calmer. Don’t forget you are coping really well under these horrid circumstances. 

    big virtual hug xx

  • Oh Jkee just rant. The waiting game is awful and that will make you anxious. Like you I am dreading everything that is coming and so is Les. He too bottles it up most of the time and if any visitors (not there is many) he puts a brave face on and when they go he is shattered. Hang in you can do this  the stamps are keeping me very busy and the hours just go then I am knackered after looking in the Stanley gibbons book for the SG numbers etc (not that you will be interested) xx

  • Morning Simon sits watching silly video's all day just nights are the worse he cannot sleep this is all new for him of course if he is awake so am I . My IBS is awful and sorry for too much information my piles are terrible nothing works I am waiting for my appointment been 10 months so far having hair coloured today so that will make me feel brighter if I can stay of the loo love to all xxxx

  • Well Jkee Les watches sci fi and quest, gosh I can’t stand them. I would rather have a film on. Les has been sleeping in other bedroom so he does not disturb me. My piles are not too bad at the moment thank goodness. I hope your hair colour has made you feel a bit better. My daughter is a colourist so she does mine and it is getting desperate but just can’t be bothered. Does peppermint help your IBS xx

  • I’m sorry to hear how others are feeling. Thinking of you, Maggie and Jkee, ahead of 29th.

    Re the feeling of anger, my Mum started shouting at the squirrels when out for a walk. My Dad pointed out that they haven’t done anything to deserve it. But the emotions have to come out somewhere, don’t they. My emotions come out when I’m on my own, which is normally in the shower or when I’m driving. Not anger yet, but I’m sure that will come.

    It might not feel like it, but you’re all doing so well. I find sharing in your experiences so helpful, and am so grateful for your candour and support.

    Take care everyone. Sending love x

  • Hi Ladies!

    Hope you are all bearing up well. Just try to take each day as it comes just now. I know though that's easier said than done. Oh Maggie I feel your pain! the rubbish Jay used to sit and watch even when he watched it he would watch it over again the next day. He watched all the food channels and anything to do with cars  and just about anything else channel hopping half way through a programme that used to drive me nuts! I don't have the TV on at all during the day now whereas it would be on 24/7 when Jay was here. If I'm in I'll put it on in the morning then gets switched off at lunchtime until teatime. Wishing you and Jkee all the best for next week. I'll probably be on before then but just hope it all turns out ok for you. Helen hope you're bearing up too and things are ok with Paul. Stay strong Ladies. 

    Vicky xx

  • Thank you Vicky. I felt a bit sick ish this morning and not sure if it is all too much, garage being built, stamps sorting out and also working from home.  I see Les looking very slender and that really gets to me. He is very anxious as both Jkee and I have 7 days before we may find out something. Absolutely dreading it. Quest is on in the morning about cars and how the do that. It is driving me up the wall xx