Hi everyone
I'm Steph from the Community team
Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer. The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.
Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis:
Supporting someone with incurable cancer forum
You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?
We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk
Hi Everyone!
Just catching up with all your posts. Oh my goodness you are all `going through the mill` and heart goes out to you all. Jkee I am so sorry to hear about Simon. Jay just shutdown the minute he got that letter about his CEA results so sorry for you I can imagine how Simon is feeling hope they can work something out when they do his colonoscopy. Maggie just reading what you are going through with Les just now I can relate so much as it sounds just what Jay went through although he didn't see out all of his chemotherapy because in the end it had to be withdrawn because of the kidney damage. Yes it's just not knowing what to do that is the worst you just feel so helpless and afraid. Hope you had that cup of tea Helen suggested. Helen, hugs to you too for Paul hope they are doing as much as they can for him as possible. Been a bit of `stuck` week for me again. Think subconsciously because it would have been Jay's birthday last Monday that has been playing on my mind all week that and Valentines day. Didn't go to the gym this week just couldn't be bothered but I'll make up for it this week- I hope! Got my Save The Date hand delivered by William yesterday for his wedding next February (15th) will give me something to focus on at least. Oh I just wish I could come and give you all a group hug with what you are all going through just now but a cyber one will just need to do. Take Care Ladies. Stay Strong.
Vicky xx
Hi Vicky good to hear from you was thinking about Jay because Simon couldn't have Chemo it came back we are both thinking same as well as finding a lump didn't think this soon. We have a colonoscopy for 29th February So yes they are acting quick Simon is deflated didn't expect bad news from the markers black cloud hanging until 29th just never ending isn't it big hugs to you xx
My heart goes out to you Jkee! This will be the worst time for you but not too long to wait. I know that will be of no compensation because those 10 days will feel like a lifetime. I hope you can find something to keep you occupied and try and stay as positive as possible until then. Will be so hard for you and it will be forever in the back of your mind. Oh god bless you! I wish all good things for you both and sending a huge hug to you and all the ladies here. Take Care.
Vicky x
Les is not doing too bad. He is extremely anxious about not knowing what is going to hapoen. He got a letter off mr Hammond about his liver but said he would not do the two ops together. Les being anxious is making me worse. There is nothing I can do to relieve his anxiousness. We have until the 29 of this month to wait. I really admire the way you coped and are coping with Paul Helen. You are so strong.
big hugs to all xx
Hi Jkee that is when Les sees mr Hammond the liver specialist. The black cloud is certainly hanging. Ten days seems ages away but try and keep positive and I will as well. I am keeping busy organising the stamps for Les as he can’t really feel the end of his fingers.
huge hugs to all xx
Oh my `D Day` for you both Jkee and Maggie. Goodness you will both be climbing the walls! Wish you both all the best for what's to come. Wish I had more encouraging thoughts for you both but will be thinking of you. Take special care and sending huge hugs.
Vicky xx
Dear Vicky thank you from both Jkee and I. The 29 is going to be the day of all days. Probably like Jkee we will have to wait for the mdt meeting etc.
i really could swear but not in my nature.
hugs to all xx
Question first time in a year this morning I am filled with anger inside bit like I used to feel when younger with pmt how do I get rid of the anger getting crossed with everyone feel like throwing something my heart is racing. Thought right I will go out in this beautiful sunshine for a walk but unfortunately a visitor came just as I had come out shower the whole time in my head thinking just go need to blow dry my hair even shouting at Simon for leaving the hall door open and the puppy came upstairs getting all the things he shouldn't feel like a awful person just wish I could get rid of this feeling even had a cry will go to a field with the dog later nature hopefully will calm me love to you all going on this journey xx
You are are allowed to get angry- when you are in that field with the puppy have a good scream!!
I think we all have times like that, it’s just all the emotion, guilt, anger and frustration and not being able to control anything as it’s all out of our hands.
We are all with you in this horrible journey
Helen x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007