Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Maggie! Quest, UK Food, Yesterday, History, Discovery. UK Drama. They would all be on as I said it would probably be things he watched the day or maybe 2 days before and watched them over again. `Hardcore Pawn` and `Pawn Stars` were favourties as well those I didn't mind at times, but `Wheeler Dearlers` was a no no that and `Counting Cars`. Anything with Gordon Ramsey he watched (can't stand him even though he's Glaswegian though you wouldn't know it until you hear his mum speak) and a programme with a guy in America who went and did restaurant makeovers for failing owners. I'd get this 24/7 but at the end when he became bedbound I would put on the TV in the bedroom for him and he's watch all his programmes there. Yes I can imagine you and JKee will both be anxious. The waiting as you know is the worst. But this time next week you'll know and I really do wish the best outcome for you both. Take Care and try to stay as positive as possible. 

    Vicky x

  • Well Vicky it is 8.36 and he has just changed itv to quest. Omg I can’t stand these programmes or sci fi one or anything he watches really. It is the way they speak. Well I don’t say anything.  I will go in the shower and he will still be watching it this afternoon. Big girl pants on and keep calm xx

  • It's all you can do MaggieKissing heart xx

  • Vicky I know. Now it is about blinking cars and how to fix them.  I will do my private work and then carry on with the stamps lol xx

  • It must be a man thing as Kevin was the same - anything to do with cars and it was on tv. Tv went on for on first thing til bedtime and now I find I might have it on for half and hour in the morning for the news and then off til nighttime. I’m having an ok week this week things seem to have quietened down ( fingers crossed it stays that way) Starting to dread people asking if I’m doing anything at end of April for Kevin and can’t believe the time is going over. This time last year thought everthing was going to be ok and look how that turned out.

    Just got to keep going ladies

    Helen x

  • Hi everyone I too have felt sick couple nights ago I was hoping it was just the nerves thumping headache today kids have picked up something wrong they ring everyday talking about nothing I can do that for hours if Simon talks he just says I will passed you to your mum x I know I shouldn't but my head is thinking if he is not here it has just been us as a team for 30 years so will be glad when Monday is here like Les Simon looks grey thin and tired still constipated and has a lump and heartburn dosn't your mind go in overdrive much easier as a emergency. Oh Simon is watching a tesla being fitted in a workshop lol love you all of you let's get through this weekend xxx

  • Hi Helen I am pleased your week has been okayish. It is definitely a man thing. Mind my brother who is 13 years older than me plays games on his Xbox for a long time, even forgot to pick my sister in law up from shopping which I found funny. Do you want to do anything for Kevin, if not, don’t do it, if so do it. I don’t think I would like anyone asking me that question at all because if I said no they would probably think I am not bothered but we have never celebrated anything. Keep up the good work Helen and rest when you can.  

    Jkee I feel okay today, not sure what it was, probably anxiety getting the better of me. Les got a letter this morning to say after the 29 Feb he has to go on the 8 March for a pre op assessment and then on the exercise bike. Dreading both now the 29 and 8 March. This is for the liver.  The garage has been knocked down so my head is staying in the shed.  Les takes dulcolax so mot constipated but still has a bit of trouble. I just can’t believe how much weight he has lost as well. When people not a lot of them of course see him they say he looks really well. 

    nothing on tv but he has gone in the other room to watch whatever. 

    talk about a rollercoaster it is more than that. 

    take care and hugs to everyone xx

  • I get you Helen. Eight months already since Jay passed gone so quick but it's felt so long. Had wee granddaughter for wee while today. William and Nicole away doing some shopping and said they can get through it quicker without her. She's beginning to get to the stage she's asking things. Looked at the pictures on the wall I have of Jay and William together and said that's my `papa` and my daddy. Then she goes on to ask `where is papa`? so of course you wonder how you're going to explain it and I told her he's up in the sky with the angels and how he was very sick and couldn't get better so the angels came to take him to live with them. I said to William and Nicole when they came back for her and they said she had been asking them too and they tell her that `papa is star in the sky` and now she says `papa lives in the sky`. She said to me but granny I can't see him up in the sky and I said I know darling but he can see you so need to be a good girl because he's watching. I could just feel the tears beginning to prick but managed to stop myself although its what I need but didn't want to start blubbing in front of the wee one. Out of the mouths of babes as they say. Take Care All.

    Vicky xx

  • Glad it's not just me then with the TV thing. Yes its up to you Helen if you want to do something to mark Kevin's first passing. I don't even know if I'll do anything for Jay. I had ideas to do something for his 70th birthday to mark that but they never materialised. sometimes it's just best to remember the person as you did but it's completely up to the individual. Maggie you'll get through this. You will, you and Jkee sounds promising if they want Les in for a pre-op assessment that's a positive. Will be thinking of you both this week. Maggie it's a roller coaster, tsunami and tornado all rolled into one.Blush. Take Care All.

    Vicky xx

  • Jkee. I don't know if you may have a bug when you said you have felt sick. I wasn't great last weekend. I got up last Sunday morning and like a cold sweat just washed right over me I thought I was going to pass out and later on in the day I was physically sick. I was still a bit `iffy` on Monday/Tuesday but I'm ok now. Of course you have other things going on so it's possible the anxiety will be getting to you too but as I said to Maggie you will both get through this. I know you will. Take Care be thinking of you both this week. 

    Vicky xx