Hi started cycle 2 on Monday.. feeling tired !! And mood isn’t a good a last week, I’ve to get ct scan next week as plural effusion wasn’t changed much , praying it’s just fluid as they have sd all along ! Does the tiredness change at all ? Had tumour removed in March and 26 lymph nodes clear
so lucky but nervous about lung ct scan.. what if it’s spread ...
Hi Stomagirl , just online now this morning as well before my morning walk! had a MRI for liver last week, saw oncologist yesterday he says it does not look suspicious but he wants radiologist to look further into it, "to make sure its not suspicious". So, I should hear back about the results of their meeting late next week. Apart from that worry, I am starting 6th cycle of cape next week, total of 8 cycles... It's a bit 'never ending' isnt it?! Even when the cycle is over, I feel I will never be free of small worries, but I try to relax a bit about it or I will go insane. How are you and what is this fluid ball, hopefully not too painful for you.
ps, also very appreciative for London Whittington hospital docs and tea, they seem very on the ball and I am grateful. X
Meant to type 'Team', not tea, but yes, I am also grateful for tea
Hi , as you say worries are never far away !! I too am getting mri on liver ! To check out lesion .. it seems never ending, I’m on chemo break till they sort out /drain fluid ball , after that art cycle 4 on capecitabine, tbh this fluid ball is being a pain ..it’s possible a pocket of fluid caused by emergency surgery, keeps me awake at night .. so part of me is hoping they can deal
it to make me more comfortable , obv they have to check for cancer cells too , yes I’m extremely grateful that drs are taking such good care of me and keeping on top of things.. I think I will
myself out a stroll .. clear my head !! stay strong
xx
Hello Stomagirl,
You are amazing! You are so positive and I am feeling such a wimp at the moment! I am so desperate for sleep. Walking sure does help but oh to sleep! Not sure which is worse for stress, coping with this or watching Wimbledon, Andy Murray sure put us through it!
Do let us know how you get on next Thursday and hope you get your CT scan soon. Fingers crossed for good results of MRI scan and hope that happens soon. Do keep us informed.
Catsski x
Oh Catsski today isn’t a strong day , total opposite.. feeling a total wreck.. pain from fluid buildup, worrying about not seeing grandsons!! I’m very much a wimp today! But rest and tv .. watchinabsolute nonsense on Netflix “call of the heart “??
But takes my mind to better place
you are not a wimp , you are a warrior and this too shall pass , better days to come take care of yourself and be kind to yourself..lots of chocolate and cake xx
lo Stomagirl,
You put me to shame! I do hope the fluid buildup is quickly drained and gives you the much needed relief from pain. I took a sleepng pill last night and what a difference that has made! Yesterday I had a duvet day, just shows you how pathetic I am! I couldn't face getting up, just wanted to sleep, but that never came. I'd be happy to be put in a coma and wake up when all the treatment is done, but that is not going to happen! Just wishful thinking.Today I have to get a grip, I have to be like everyone else and just get on with it. Like your idea of chocolate and cake but I'm into chocolate ginger biscuits and ginger tea. I have never enjoyed herb teas before but they are are so good, I enjoy the peppermint and camoumille. They really help with the stomach.
You probably do not realise that you are keeping me strong,thank you!
Catsski
Hello Rose2020,
May I ask if each cycle gets any easier as I see you are coming up to your 6th cycle. Do you ever get any arm pain with the infusion? I have had two, the first one was okay but the seocnd was painful, something that I was not expectng.As the treatment goes on do you get back into a normal life routine or is it painful all through? Would be interested to know what to expect.
Cattski ( the wimp)
Hi Catsski, i am starting 6th cycle of capecitebane but only oral, I have never had an infusion .. they have been 8 oral pills per day, from March only. not able to comment sorry, hopefully it will improve for you!
Hey Catsski, aw so kind to say I’m keeping you strong ! Hope you are in better place today, we all have days where outfit of choice is pjs !!! Seriously you are stronger than you think ! Cancer sucks and so does chemo .. your body has taken a battering, o wish I could fast forward to nov and then dec to get all these tests and chemo over too. In between wishful thinking I just look at the good things and when I have good days I enjoy them .. bad days are in bed and painkillers.. You will be fine .. words of my 7 year old grandson “ah can dae this” .. was wt he sd after brain surgery.. so every morning I put my feet on floor , I say “ah can dae this “ .. and you can too xxx
Hello Rose,
Many thanks for replying,Hope all proves to be harmless with the liver.
Catsski x
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