1st chemo

Hi Hayleyc89,

I can't really comment on your specific chemo but i found the first round of of 14 days  chemo ( Capecitabine tablets ) okay apart from a little tiredness, then second round i had a few side effects, heartburn, burning feet and extreme tiredness, after reporting to oncologist they reduced my dose a little from 11   tablets a day to 8 which has been a lot better, last round i hope in january after blood test on monday.

Hope all goes well,

TG

HI Hayleyc89, that's great news your husband feels so well after his first chemo, long may it continue. My husband has completed 2 rounds of Folfox, with the 5FU pump for 2 days, and so far had no side effects. I have noticed the day after chemo he's particularly feeling very good, but the next 2 days he's a bit tired, I think it's the effects of the steroids and coming off them. The rest of the time he's really good. I've read as the chemo builds the side effects can get worse, but everyone is different and we're just appreciating these good times at the moment.

Love Frances xxx

Hi Hayley

I've just had my 4th Oxiplatin infusion followed by Capecitabine, and have found the side effects do not get worse, if anything the last two cycles have been brilliant with few side effects - but I might just have been lucky!

Round 2 for me was the worst with the Capecitabine dose being too toxic for me resulting in almost constant exploding diarrhoea! The wind was blinking awful lol. My dose has been reduced to 1500mg twice a day from 1800mg and this made all the difference.

Hope he continues to feel well too. X

Hi my husband has started with some side effects now extremely fatigued and feels sicky and confused he finished he's steroids on Friday so I'm just wondering if maybe that's why he has started to feel a bit groggy. Good luck to you hope all goes well for you x

Hi he's started to feel some effects now extremely fatigued and sicky and confused he finished steroids on Friday so I'm wondering if that's why he's feeling this way he's also on injections to boost he's immune system. Hope everything goes well for your husband xx

Thank you for your reply Ted I hope you continue to feel good x

Hi Hayley

Yes the steroids can make you feel like the Duracell bunny lol, the come down can make you feel very tired, keep on top of anti sickness meds, they really do help, as does ginger or peppermint tea, ginger biscuits, and the great go to when you can't face food, toast.

The confusion is probably chemo brain, can make life feel like its slow motion.

We're all different and get differing effects, they forgot to tell me about jaw pain and my goodness that flipping hurts, only on the first two bites of food then it goes, but it's a shock when it happens.  

Teri xx

Ted63

seen ur reply to hayley and I’m having same chemo starting tomorrow for rectal cancer with possible liver spread I’m having same meds as you and iam worried about what the side effects are going to be like, I’m 46 i have 3 kids 17, 7, 5, and I’m so independent but I don’t know how knocked back by the chemo i will be so ur experience from day one would be great info for me thanks

louise 

Hi Hayley, I’m having a break from chemo for a month following my  5th chemo as my side effects got worse - I am on FOLFOX and 5FU pump.  Very dry and cracked skin, sickness and diarrhoea are prominent for me and my chemo had to be reduced to 80% after my 3rd treatment and will be reduced yet again as I was so ill after my last treatment.  Fatigue is also a side effect but I have still been able to do daily if short walks.   Best of luck to you and your husband. 

Hayley  After my  Emergency  Op I was told I didn't have a bit of cancer left in my body..I was asked if I wanted Chemo JIC.Unfortunately I ended up in hospital with side effects.  Everyone is different  It's a hard time for all of us  but we will get through this horrendous year  I'm new to this and this right has been a great help