Struggling with secondary diagnoses

FormerMember
FormerMember
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  • 14 subscribers
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Hi, 

I was diagnosed with mets 3 weeks ago and I’m really struggling to come to terms with it still. I start my treatment Thursday which is...letrozole, Ribociclib and denosumab plus zoladex injections which I started a couple of weeks ago. My question is how do you all cope day to day? I find myself having horrible thoughts most of the day and wondering how long I have left, I’m not getting on with my life at all and find even simple tasks take me forever to do as my mind just won’t let me forget even for a second. I have 2 lovely boys who are 10 and 14 and to think I won’t be here to see them get married and have kids it’s soul destroying. I’m sorry for the negative post but I really am so sad and I feel so alone as I have no partner either. 

thank you for reading xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi,

    my mum has just recently been diagnosed and I’ve been doing some research (positive only) I found some YouTube videos of other people who are a bit further into the journey. I found them quite reassuring to watch. If and when you feel ready I would recommend a watch. This particular story I found helpful- https://youtu.be/kdPQA4hv1sY

    sending you best wishes! X

  • H Lollipop                                                                                                                                                                                      Thank you for the last message,i felt i could breath a little easier after i read it.Yes my breast cancer was er+and i have heard of Ribocliclib. I will most definitely not be googling anything about the condition i am to scared.I hope your treatment went well today,i will let you know how things go tomorrow. Take care Xx

  • Hi Lollipop                                                                                                                                                                                                                                                 Just got back from seeing my consultant, he did a quick examination and thought he felt a limp under my left armpit,so had a scan right away and thankfully there was nothing to worry about so whoooooooo.He is now fast tracking me for a bone scan and ct scan, and then we will meet to discuss the findings.He did ask what was worrying me i said secondary bone cancer and that i know its not curable but hopefully treatable, he then said is two previous patients were 10 and 8 years respectively in remission. Then told me to stay positive, if only i could. Did you start your treatment yesterday ? Hows it going Keep calm Xx

  • FormerMember
    FormerMember

    Hi lollipop84, I have lung cancer, spread to lymph nodes, femur bone and spine. Before bone cancer was detected I had been due for chemo then targeted radiotherapy. Now not an option, started immunotherapy 2 weeks ago, so far, so good, oncologist not ruling out radiotherapy down the line. I sometimes feel like a weeble as I maintain positive (mostly), I get knocked down, but every time I get back up. Every day is a new day and a new day to fight so I keep going. Not always easy, but I refuse to give in. Don't Google statistics, out dated and as for prognosis there are people I've met on lung site given 3 to 6 months and that was 4/5 years ago. Don't ever be scared to come on here, share your thoughts, worries or anger, we have all done it and will all support you xx

  • FormerMember
    FormerMember

    Heĺo lovely. I understand why your heads al over when I got diagnosed it was straight yo bones spine and skull I however was in very much denial until I read was only treatable then broke down which was u needed nine speead from the breast I'm on zoladex lethzole and denesaub I've had various radiotherapy last scan showed good shrinkage cant see liver deposits any more my oncologist was very pleased only issue I have is calcium keeps dropping so sincer diagnosis I've only has 3 jabs of denasaub and management of pain as crushed verrbae but having surgery on Wednesday inbox vme if you need me take day each day as it comes have naps listen to body cxxxd

  • Hi Lollipop                                                                                                                                                                                      Did you start your treatment on Thursday? if so how are you feeling.Hope all is ok Xx

  • FormerMember
    FormerMember

    Hi , if you haven't already found it, please check out the positive secondary BC stories here:

    Point down tone2Point down tone2Point down tone2Point down tone2Point down tone2Point down tone2

    https://community.macmillan.org.uk/cancer_types/breast-secondary-cancer/f/breast-secondary-cancer-forum/186433/positive-secondary-breast-cancer-stories

    I hope that you are reassured by the survival stories (10, 15, 20 years and still going strong) and the research currently ongoing.

    Stay strong, it does get easier. Four leaf cloverMuscle tone3