Zometa infusion after breast cancer

Hi Dolly dreamer and welcome to the online community

I'm not on this drug but I noticed that you hadn't had any replies to your post. I also noticed that you'd posted this question in ask a nurse and you have had a reply from Kate. In case you haven't seen it clicking here will take you to her reply and you'll see that she advises you to "contact your hospital team or GP straight away".

You may find it helpful to join the secondary breast cancer group as it's generally a busier group than this one with more people around to reply to posts.

If you'd like to join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself or post a question after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

When you have a minute it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

I hope you'll soon feel better

x

Hi Doreen

I'm on Zometa and my first infusion totally knocked me out - it was like flu.

The second one was considerably better, though my bones ached like crazy for a few days. It was only the next couple where I could still tell that I'd had it, but each was better than previous.

I've been on it three years now and for as long as I can remember I've been side effect free. I have an infusion every month.

Hope things get easier for you as you go on.

Hello dolly dreamer, I was told I would be having Zometa as soon as my mouth has healed from extraction of 3 teeth. 6 weeks ago had 2 stents fitted and am awaiting to see oncologist on 17th october. Had another pet scan last week, so subject to how mouth has healed I will also be on this. I can only hope you feel better soon . I hope someone will be able to tell you what you will need to know .good luck.

Hi, Ive just joined the group and noticed your post.

I had my first Zometa infusion on 12 Nov. Am scheduled to have it every 3 months. I was told feeling flu like for a few days was normal and to take paracetamol to keep temperature down. I felt sick too and took stuff they had given me for nausea. I also started Ibrance (Palbociclib) on same day so not sure which caused the nausea. I did feel better but not great and ended up in A&E on 26th with vomiting and high temp. As I had started a few treatments I was not sure which caused this!

I hope your sickness passed and you are doing ok now.You can look at my profile to see if we have anything else in common.

I have also had some serious pain in my leg which onc put down to the Zometa. Would like to hear about other people's experiences of the drug.

I hope your sickness passed and you are doing ok now.

Hello to you . After reading what happened to you when taking Zometa ,I really don't want it given to me. Although you did say you wasn't sure what caused the sickness .

Last time when saw the oncologist my result was stable on one side and slightly diminished on the other . I am taking :-

1 . Letrozole,  CBD oil for Cancer                                    2 .Steroid, Adcal , for Rhumatoid Arthritis                    3. Omeprazole  stomach protector and Co-codemol for pain                                                                                4 . Clopidogrel for blood thinning stents in August  Aspirin..

My oncologist says the meds. CDK4/6  and Zometa because of the result  of the PET scan  "we will save for later ".

Now with a broken foot in 3 places I am on crutches or in wheelchair and back pain was bad yesterday.Is it because of strain trying to do crutches ,I am absolutely useless on them or sitting in bed all the time or in wheelchair,  so bad posture or is the dreaded somewhere else now !!!!

I do hope you are feeling better.

I wish you a painless!!! Relatively feel good Xmas and New Year.xx

Hi there. 

I really cant do crutches either ... (after effects of using my lat dorsi muscles to make boob-like things 14 yrs ago). I couldn't walk for a few wks after my surgery and the physioscwere fab. I asked for gutter crutches which they found for me and I could manage to get to loo in a weird crablike fashion. The best thing was a Pulpit Zimmer. Id seen one years ago and asked to try it .... wow it was fab BUT like gold and would need to be approved, ordered specially etc. I wanted out of hosp so settled for looking rediculous. When I could take more weight thr my legs, so less thru my arms and shoulders, I progressed to elbow crutches ... got east grip ones that spread weight thru hands. Im now onto one elbow. Out of house my husband pushes me in wheelchair. I got one thru NHS and successfully applied for Blue Badge. Im about 9wks post op but bone mets pain and fatigue are slowing down recovery from surgery.

The other thing I found invaluable is a mobility trolley. They are not mobility aids but I don't care!! I still use mine in the house and it reduces my pain and fatigue. I have a perching stool in kitchen and can prep food sat down using my trolley as work surface. I also have shower stool for shower and syt on it to clean teeth etc. Toilet rail and seat unit for toilet.  All this kit helps me reduce strain on my body therefore reducing pain and fatigue. 

If you want to know about anything Ive mentioned just ask. x