Hi everyone,
Just looking for some support or others experiences really. My partner who is 28 was diagnosed with Ewings Sarcoma in May. It's in a bone on his foot and also spread with a few lung spots. So the treatment plan has always been, chemo, surgery and radiotherapy.
We've really been through it all with two collapsed lungs, a bad infection and shingles so far (only completed 4 cycles so far). Most chemo cycles have been pushed back due to low blood counts etc.
We found out last week that while the imaging shows response to chemo, it is likely that he will need a below the knee amputation as to get clear margins would leave him with a very unstable foot and therefore not very functioning. So to give him the best independence and get back to being active (he was extremely active before all this), amputation is the best option.
We're really struggling with this, it was always a possibility but I think we were hopeful at most he would loose a few toes. Our morale at the moment is very low. We've moved back in with his dad and step mom as I was living back home in Ireland doing a Doctorate. I've basically had to put my whole life on hold. My partner is either at home or in the hospital. We're currently on an extra unexpected two week break due to the shingles. We just can't seem to catch a break and therefore having to think about if the house needs adaptations, what our life is going to look like etc is just really difficult at the moment.
I want to try mentally and physically prepare for this but I'm struggling and my partner is really struggling to wrap his brain around this and therefore wants to avoid the topic. Any advice or (positive) experiences would be really appreciated right now.
