Hello. This is all so new to us

Hi Nettm and a warm welcome to the group. I hope you find it informative and supportive as you go forward. We know how anxious the early days of uncertainty and not knowing can be. A second TURBT is routine in most cases. This can give a more accurate diagnosis. There should be some scans along the way. All parts of the jigsaw. Unfortunately, waiting is all part of the game. Too early to say what happens next but once all results are in and a treatment plan is in place, things tend to feel a bit better as you have something positive to focus on. When you get him home, make sure he is drinking plenty of water to keep the debris flushed out. Lots of experiences here so feel free to ask anything. Best wishes.

Hi Nettm,Welcome to the group.I hope you will find it helpful and supportive.Best wishes to you both.Jane

Hi. Thank you so much for your helpful reply. The waiting is just awful, isn't it? I'll make sure he drinks plenty - he's not usually very good at drinking much. Maybe because of the after effects of frequent loo visits! 

Sorry for all the typos in my post. I'll try to be more careful in future.

Thanks again and best wishes to everyone here,

Nettm

Thank you. It's helping me already!

Nettm

It is difficult to drink plenty when you don’t want to spend all your time in the loo.The trouble is not drinking enough causes the bladder to become more irritable and that in itself can lead to extra bathroom trips.Most of this group find lemon barley water helpful to drink.I used to find pear juice was soothing too.Jane x

Hi , there are loads of nice people on here with loads of experience and information. 
I previously was in the same situation aprox 14 months ago and anxiety levels go through the roof , especially waiting for results to come back I too personally had 3 TURBT opps and BCG was recommended which I had unfortunately not successfull , which rightly so sent my nearest and dearest head into overdrive, but was advised the only real option was to remove bladder and prostate which was daunting  this was carried out 4 months ago and I thankfully received the all clear last week. Every case seems to be slightly different but I have recovered well and back to work ( downside ) there is lots of support around if needed and my advice would be don’t be afraid to ask, I know it’s easy to say after but try not to worry I’m sure you are in good hands 

and keep off google 

all best Keith 

Hi Netttm, welcome to the forum,  and of course, do contribute: we are all more or less in the same boat and there is no hierarchy here! 

I understand your husband's stance and feel it's a sensible one while awaiting more results. Certainly, worry and rushing to (probably) the wrong conclusion gets us nowhere.

However, if I may suggest, you might find the brochure on Bladder cancer that Macmillan produces helpful. There are illustrations and clear language in it and you can download it onto your computer if that helps. When I was given my diagnosis the hospital gave me another booklet from the Bladder cancer charity so maybe you received that? If not that's also useful to read. In either case do please remember not to rush to the worst case scenario! Bladder cancer is treatable so please try not to be too anxious.

As Rily says there's a fair amount of waiting  in between scans and Turbts but once they make up their minds about what sort of tumour he has and what the best treatment for him is, everything will start to speed up and there are likely to be more scans, other doctors and nurses to meet and treatment to start.

By the way, my cancer was muscle invasive and I can tell you that 3 years after diagnosis, chemo, robotic removal of the bladder and some immunotherapy I feel fine and people say I look it too. Nobody notices I have a stoma and bag, although I'm happy to discuss it if they ask.

There is life after Bladder cancer these days. Probably you and your husband  like me, remember the time when there wasn't much they could do. That's no longer the case, as most of us on here can testify.

I hope that sets your mind at rest a bit. 

All the best,

Latestart

Thanks for that. I'll try to keep off google. I think I wrote grade 1 cancer, but having just looked at the consultant letter it's a G3pta which he described as "aggressive". Sorry your BCG was unsuccessful, but glad you got the all clear last week. It must be such a relief!

Cheers, Nettm

Thank you  so much. Very reassuring to hear of your experience - unpleasant though the process must have been! Three years is a long time, but the end result is what's important.

Hubby's cancer is aggressive, (Grade 3 - not 1) so may well be muscle invasive. We'll find out fairly soon I hope.Thank you again for your reply. I'll download the brochure now. Nettm

Hi netty

Welcome along to our group. I hope you find it helpful and encouraging. To find out more about the experiences of the forum members just click on the profile of the members. We are all here to help you and your husband get through this.

Best wishes 

Mark