Just saying Hello

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Hi Folks 

just thought I would say hello as have been reading peoples stories on and off over the last 18 months finding the stories both helpful and informative, have just decided to actually join Grin

bit of background 

got diagnosed with bladder cancer June 24

Had several Turbt opps with a course of BCG treatment which unfortunately wasn’t successful 

it was suggested I had bladder and prostate removal with conduit surgery 

which did frighten the life out of me , to be fair 

had opp Monday the 14 April came home with my new friend on the 19th who is currently behaving himself Grin all in all very straightforward 

as not a person who can sit still for 5 mins finding the current forced rest a bit of a strain so one of the reasons I find myself writing this .

im male 64 , happy to share any information of what went on over the last 18 months 

hope everyone is having a great Easter Grin

  • It’s been a fair bit more than a sensation today Grin

  • Hi Keith. Welcome to our friendly forum. I had my diagnosis of T1G2/3 confirmed in June 24 as well but opted for surgery which took place in September last year. I have recovered well and now back in work! With regards to your particular symptom of feeling to pee and getting some flow, it is perfectly normal as the serous/lymph fluid in your pelvis after surgery would still come out via the normal route. Some people need to wear pads for some time. This will lessen over a period of weeks but can rarely last for a couple of months. You should’ve been given this info preop but there is nothing to be alarmed about. All the very best.

  • Thanks for the explanation, wasn’t overly worried, as ever day seems to be a school day over the last 18 months with not knowing what was going to happen next Grin

    just the worry of getting all the biopsies results back which will hopefully be fine 

  • Hi kpg

    Just wondering how your getting on with your new friend?

    Best wishes 

    Mark

  • Hi Mark , thanks for asking Grin

    well it’s been 4 weeks since the opp and I seem to be feeling remarkably well , a lot better than I expected, still feeling tired but dosnt seem to stop me doing much but being sensible, no leaks or catastrophes Grin well saying that did jump out of bed the other night totally forgot about night bag pipe and went flyingGrin, but really nice not having to go to loo every 10 minutes. Other than that just waiting to see surgeon and hopefully biopsy results come back ok , certainly picked right time to be ok work , basking in the sunshine 

    cheers Keith

  • Ps Mark , hope you are ok Thumbsup 

  • Hi Keith,It’s great to hear you are doing well.Good that you are being sensible as it’s still early in the recovery.Hopefully you will feel less tired as time goes on.Best wishes Jane x

  • Hi Keith 

    Well that's good news, it does take a bit of getting used to glad you are adjusting well. Iam 12 weeks post op and going back to work on reduced hours at the end of the month looking forward to it. Keep us informed of your biopsy results and hope they are not too long in coming 

    Best wishes 

    Mark

  • Will do and don’t work to hard Grin