Recovery after TURBT

Hi Furbabymama, just reading through your profile and yours sounds so similar to mine in 2022. Same results, Grade 3 PT1. 

I am at bcg 18 and hoping to continue with the whole course. Reading yours brings it all back to me. X

Hi Bumblebee49 

BCG is a tough path to choose, I feel. There is such uncertainty attached to it, but I'm with you, I intend to finish the whole course. I am not ready to part company with my bladder! I've got number 3 of my induction tomorrow and hoping as always that the side effects  are OK. They were worse for number 2 than number 1 but I'll just have to put up with whatever gets thrown at me.  I haven't been back to work since my diagnosis and am wondering if I ever will. The bad news came thick and fast with appointments so frequently that there hasn't been a natural point in time to go back. I do try to stay positive but then I think if the find something at a cystoscopy check then I'll be back in surgery and then comes the awful waiting for results. I feel like I just want to spend as much time with my family as I can. It can be very depressing.

Sorry people I don't want to put a downer on your evening, but sometimes it's just difficult.

Love to all, Ade xx

Hi Furbabymama .. For me, 9 BCG down and 10 to 12 later this month. As far as side effects, only number 5 so far has been notable (fever and chills for 3-4 days). All the others, the usual painful urination and regular visits to the loo for the first 24 hours.... and feeling a bit "warm". Hopefully you will be similar in that its only the odd one that knocks you out.

Thanks Tortoise, that's good to know. I'll keep my fingers crossed for tomorrow and see how it goes.

I'm so glad that others on the forum understand the challenges that BC brings.

Love Ade xx

Ace I totally share and empathise with your situation . Leo