Newbie

. Hi Kit and welcome to the community, although sorry you had to find yourself here after your previous experience. Firstly, let me say that bladder cancer can be treated successfully, and the earlier it is caught the better. The first step is usually an op called a TURBT to remove what they can. Usually done in day surgery. Biopsy results will determine where you go from there. Try and stay away from Google as there is a lot of out of date and misinformation out there. Always someone here to answer any questions. Wishing all goes well. Best wishes.

Hi and welcome x  sorry to hear you have been diagnosed with bladder cancer..you have fought cancer once and come out on top and you can do this again xx I remember when I was diagnosed in February this year the nurse told me that if you're going to get cancer bladder cancer is a better one to get ..I felt so bad when I was diagnosed i kept going over so many terrible scenarios in my mind causing me to be so anxious..I couldn't sleep and went off food  I was in a bad way ..the weight loss didn't even make me feel better lol this forum has been so encouraging and helpful with personal stories and advice .. try not to worry too much when you get your diagnosis and staging you will be on route to treatment and feel more positive .. hope you won't be too long waiting for proceedure..please take care and try not to let this take over your whole life x

Another [brief, I'm supposed to be cooking tea..] welcome. Do think of calling the MacMillan helpline if it will help you let the emotions out verbally and get some support. Also I believe Fight Bladder Cancer might arrange buddies if that would help. Anyway do keep on letting us know on here whenever you want. Do you know when you'll get a date for the TURBT? You will likely also get sent for a CT scan to check in case of any spread, that is routine and not anything to panic about just because they are doing one. 

meantime be kind to yourself, and if possible get out in the fresh air every day, it helps de-stress and so helps you handle all this while you wait. Most agree the waiting is the worst thing.

Regards, Denby

Hi Kit9600. Its tough when you have family and responsibilities, but sometimes you don't have to be the strong one all the time.  Its hard I know but children can be remarkably resilient and your wife will no doubt be looking to support you. Let them become involved if they so wish, it will help you so much and its good to openly discuss how you feel. 

You will get good help from the people on here, many of them having had a lot of experience in dealing with our problem.

Ask away any questions, or discuss your fears, it all helps. Best regards.

Hi Kit9600, So sorry to hear this. My husband (late 40’s) was diagnosed around a month ago. We have children too. Please do share with your wife - she’ll want to support, care and love you. I know you want to be strong for her and your daughter, but she’ll be wanting to help you anyway she can and be there for you to share your fears. As people have said, the waiting for the diagnosis is awful. I likened  it to feeling like a zombie in a parallel universe - the world was carrying on when our world had been shattered.

Ask any questions you have on here the lovely people will answer them. There are also some really positive stories. I’ve asked Flight Bladder Cancer for. ‘buddy’ and have also just joined the Friends and Family group at Maggie’s at the local hospital. They also have a group specifically for BC patients.  

The Macmillan support telephone line is really good (I’ve called them a few times) . You can speak to someone for any medical questions you may have or for emotional support.  The lines are open 8-8 (I think) every day.  

If you need support, we will be here too 

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