Hi
I am new to the forum so hello everyone.
I was admitted to hospital with urosepsis at the end of November last year. During a routine CT scan I was told I had a suspected bladder malignancy which was confirmed after a cystoscopy on December 18th.
I underwent a TURBT on February 1st and was told that I would here within 3 to 4 weeks what the outcome was of the deep biopsies. Four days after the TURBT I was admitted as an emergency back to hospital and transferred to another one as there was no urology team on over the weekend. I ended up back in theater where they discovered I had a solitary clot that had filled almost my entire bladder. This had to be broken down and removed, they then found a hole that hadn't been properly sealed from my original TURBT so had been bleeding in to my bladder. I recieved 2 blood transfusions as a result and am now back at home.
This afternoon I have recieved a phonecall from the hospital asking if I can attend the urology clinic to see the consultant on Monday morning. The receptionist also told me that I could bring some with me which they haven't been letting me do. It will only have been 2 weeks from my TURBTS and not the 3 to 4 weeks I had been told plus I had also been told it would be a telephone appointment and not face to face. I am petrified I have cried all afternoon. I just don't know what to do with myself.
Hello and welcome to the group. Sorry to hear you have had a tough time of it. The early days of uncertainty and not knowing can always be anxious times. We can never pre-empt what will happen at these consultations and always think the worst. You can never read anything in to timings of appointments, they are often rearranged for no reason. Your doctor may be putting a treatment plan in place and you will find out more at your appointment. In the mean time, try and keep yourself busy to take your mind of it, if possible. Best wishes.
Hello bookworm I also had turbt operation on February 1st I was told I would hear in 3 weeks but I had a phone call from hospital asking me to go in to see the consultant on Tuesday morning ...please
try not to worry too much I'm trying my best not to xxhope you feel bit better take care
