Having had my bladder, womb etc removed in March 22 and a clear scan in July decided to have a holiday.Took advice from oncologist and specialist nurse about pain around my groin and genitals, all saying it was nerve pain. Booked what I considered to...
I have been told by my consultant that i have a thickening of the bladder wall and they wanted to check inside my ureter and couldn't get up because of the thickening. So, the consultant said we will do a CT with contrast on the urinary track and if we...
It’s 3 years since I had the cystectomy.I am so grateful to still be here thanks to the skill of my surgeon.I would like to thank everyone here for their support especially this year which has been tough.It means so much to be a part of this community...
A big hi to the Group. I don't know if anyone is privy to information on BCG. Is there a restriction on doses at present in the NHS . Having had 9 treatments and due shortly to start on 10 to 12 , but now hear that there maybe restrictions on this...
Hi all, I hope everyone is as good as they can be. You may recall I posted a while ago stating that my bladder is basically hopeless as I'm only capable of holding around 50ML of urine. Well, since then, it's got worse, and I'm lucky if I can hold 25...
I am feeling very deflated today as I was feeling great after 1st Turbt in July, it wasn't good news Grade3 PT1 but it had not spread, I got back to work and had a normal 7-8 weeks. Had second Turbt yesterday thought it would go better as I thought just...
Hi My mom who is 80 recently had turbt results. Its a grade 3 which was taken away which we weren't expecting since told tumours only superficial. They are planning a 6 week course of bcg treatments. My mom isn't very mobile has scoliosis of spine...
Hi All, Got my dates yesterday for my Mitomycin treatments. Starts tomorrow, and then every Thursday after that to a total of 6 sessions. Hoping that I tolerate it well. Then will have a cystoscopy I think 6 weeks after the last session to see...
So I have a new symptom, which frankly is a little scarey. I have what seems like a sciatica pain in my hip & leg. It keeps me up at night & I end up only being able to go to bed around 3am. I saw my GP, who did surprisingly little to test for anything...
Hello all I had bladder cancer and I had Turbt and currently on BCg treatment. Lately getting left leg pain and pain in rectum area and unable to more than 30 min I am waiting CT scan results now Has any one had similar symptoms with bladder...
