Hello all. I wish I could stop reading Tracy Emin’s postings. Why am I torturing myself by doing so. Now I read she has to empty her Urostomy bag ever 20 minutes. That scares the begeevies (is that a word) out of me.
Hi Mack
Do you want to continue to believe sensationalist journalism or the real people here in the group? I don’t think you know yet if you’re having a urostomy do you?
Here’s an example of my day so far. I woke before 6am, but stayed in bed for a while, connected to my night bag. Got up around 8.30am after disconnecting from my night bag. 4.5 hours later, and three cups of full strength coffee, and I STILL haven’t emptied my bag as I’ve been doing other things, and it’s not full. I wouldn’t leave it to get full as it’s uncomfortable when it is.
What is compelling you to read that woman’s posts? It’s something I’m finding it difficult to understand why you would?
Sarah xx
My sincere apologies to all and thank-you for your patience with me so far. I have just been consumed by worry and I’m in limbo.
It’s a personality fault. When something troubles me I just can’t let go.
My thanks again to all on this Forum.
Sorry if I sounded sharp there-I can see you are very anxious about everything. But worrying about something which may not be in your future leads to a loop of anxiety with no purpose other than making you feel worse.
Tracey Emin makes money from selling stories, and boring stories about successfully living with a urostomy wouldn’t make her the same kind of money.
Being in limbo about a treatment plan is a difficult place to be-I think we’d all understand that having been through it ourselves. Once you have more information, you will hopefully be able to start to focus on positive outcomes, whether it’s BCG treatment or something else, even losing your bladder. I have never in more than 6 years had to empty my urostomy bag every 20 minutes. More like once every few hours, depending on how much water I’m drinking-not enough today, apparently!
Sarah xx
Hey Mack, I have also read Tracey Emin's posts. She does sound to have had a really tough time. I believe she may have had a hysterectomy as well as bladder removal, so that suggests some spread to me. Not that I have any medical qualifications 
You are at the worst place in the system, and we all empathise with anxiety while waiting. My suggestion is distract yourself. Junk tv and cake are my strategies. Keep posting we want to help because we remember how other people's messages helped us. Hxx 
It’s common to have a hysterectomy with bladder removal without it meaning spread. I lost my bladder, womb and rectum along with other things-but I didn’t have cancer in any of those places.
Sarah xx
Oooh... don't read all that stuff! Stick with this forum and people who have no reason to maybe over dramatise or add stuff to make it more colourful! I am 75 and have bladder cancer, discovered after surgery for a tumour in my kidney which meant removal of my kidney a year or so ago. Now on BCG immunotherapy treatments ongoing with cystoscopies in between and one TURBT so far for a recurrence. Bladder removal is by no means a certainty.. you may not ever even go there. Lots of treatment possibilities ahead at this stage. I decided to trust the experts, go along with the treatments, and in between enjoy life and carry on as usual. I have been lucky maybe but so far it has not been too bad at all.. Just back home in Hampshire from 4 days racketing around London seeing old friends, going to the theatre etc! And reminiscing about happy 1970s days living up there..! Personally I feel very lucky that this is happening to me in "old age" and I have had such a long trouble free life til a few years ago. SO much worse if one was younger and had dependents, kids, work etc. Keep positive, do things you enjoy, and keep us updated for sympathy, pep talks and even mild tickings-off! 
