Hello Everyone
I’m 3 years post radical cystectomy, diahorrea has peaked on and off for the last few months. I’m feeling extremely tired and ache all the time. I struggle to sleep and when I do I get woken up by needing to void then struggle to get back to sleep again. This leaves me exhausted every day. Even a trip out anywhere wipes me out. I struggle with my back and hips. I get pins and needles in my feet and calves as well as restless legs at night too.
I’ve mentioned these to my consultant and GP. I’ve asked for B12 injections but both have said no as my levels are normal. I looked at my results on line and they are just above borderline.
my symptoms are really getting me down, I’m already on antidepressants and take paracetamol and co codamol when the pain is extreme.
I don’t want to become a nuisance and keep pestering but I feel as if nobody listens or cares and feel like I’ve just got to get on and deal with this as if it’s my new normal.
I eat quite healthily and drink plenty of water of water I just don’t know what else to do.
For the diahorrea I’ve been told to take Imodium which is not really working as anything can set it off. I can’t pin point anything and it’s very unpredictable and my anxiety is through the roof. I don’t go out and feel like I can’t enjoy anything anymore. Has anyone any suggestions what or where to go for help and advice??
thanks in advance 
