Neutropenia after two rounds of immunotherapy

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Hello all

I’ve previously posted about my lovely Mum who has just started immunotherapy due to her cancer returning and spreading. Last night she was admitted to hospital with neutropenia.

She had her second round of immunotherapy (Padcev & Keytruda) last week and has had itchy skin, upset tummy, has barely eaten and in the past few days extra in tiredness, breathlessness and high heart rate. She’s been pumped with antibiotics and they are trying to keep her safe from infection. This is not a side effect we had read about for immunotherapy - has anyone else experience this?

I’m so worried about her, and wish I could do something to help. 

  • Hi A_R, this sounds really hard for your mum and for you. I think if I was your mum I'd be glad to be tucked up in hospital where it's their job to keep me comfortable. Sending you love and strength. Sometimes we can't help. H xxx

  • Yes that’s some comfort that she is in the right place and they are keeping an eye on her. She was so torn between starting this treatment or not, as was worried it would really affect her quality of life. It’s hard to understand if this is the norm with this type of treatment, or if she’s just unlucky on this first couple of treatments.