Post radical cystectomy

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I have a question - I’m eight post radical cystectomy and am struggling with constipation I’m ok if I take laxatives but don’t want to become dependent on these.  Also post surgery I had a problem with my right leg that I could not move it back towards centre, the opinion of the doctors was that this was nerve damage from the removal of lymph nodes and no one can give me any idea if this will improve or that’s it.  Obviously as it’s my right leg I can’t drive as I can’t hit the brake and am struggling to get up and down from the floor.

i am so frustrated and am wondering if anyone else had the same problems and can tell me it will get better.

other than those two “symptoms” I’m doing fine walking every day.

  • Hi. I assume you’re 8 weeks post-op?? It’s quite common to have some altered bowel habits after RC as they would’ve taken part of your small bowel and it takes some time for it to settle. It’s really important to treat your constipation actively as you don’t want to be straining. I made sure that I ate a lot of fibre including prunes to avoid it and now, almost a year post-surgery, my bowel habits are almost back to normal. With regards to the weakness in leg movement, you’ve been given the right advice that it can happen due to nerve damage during lymph nodes removal. I had the same problem with my left leg. It lasted many months but I kept doing various exercises for my core which included movement of legs. Now the leg strength is almost back to normal, so thankfully the nerve damage was not permanent in my case. Let’s hope that your leg strength improves gradually. It may be helpful to get some physiotherapy and core exercises for people with stoma. All the very best!

  • Thanks for your answer, I was starting to think I was the only person with leg nerve damage.  Yes eating high fibre, drinking lots and doing the exercises.  Just don’t seem to be seeing an improvement but will persevere 

  • I didn't have your particular issues, but I do recall that around the 2 month post op mark, feeling quite low at times. Seems to be that by then, there has been quite a lot of recovery, so you are doing a bit more, but still quite limited in strength and energy. My emotions were rather fragile so I couldn't cope with any unexpected stress. Hope your problems resolve soon, sounds as though you are doing well otherwise.