After 2 wonderful clear years, 2nd 6 month cystoscopy showed 'red marks'. Back on Friday for a 3 month check based on that. Fully expecting a recurrence. I had 2 turbts and 2 years of BCG, which worked well considering it was an aggressive tumour and we chose the BCG route rather than cystectomy.
Not confirmed I'm back on the wheel again, but while facing it, wondering if anyone here is in recurrence and experiences? We went into BCG treatment fully aware that we were kicking it down the road and it would very likely come back, and that cystectomy is a likely end game...
Thanks in anticipation.....
Hi catlady101 . Sorry to hear you are in limbo worrying whether it is back or not. These red patches are common on here and in many cases they turn out to be inflammation from treatment, so hopefully that is what it is. I have had several false alarms over the years. Inflammation can look like a recurrence and so they need to check. If it does turn out to be back, then it sounds as if your team are on the ball and ready to deal with it. I hope all goes well. Best wishes.
