Nephrostomy Advice

Sorry to hear your mum’s health problems. We all understand the fear and anxiety you and your mum are experiencing, though everyone has different degrees of stages and grades of their cancers. I haven’t had a nephrostomy so can’t advise but hopefully one of our lovely group will come along soon to share their experience. My go to for guidance has always been my Cancer Nurse Specialist….does your mum have one she could talk to? They really are the experts on what treatments mean.Sending you and your mum love and best wishes. Hxxx

Thanks H,

She has a breast cancer nurse specialist, but we will try to speak to a Macmillan specialist in that area via the Macmillan call centre. She is still keen to talk to someone who has experienced living with a nephrostomy,

Best wishes,

Suzanne

x

Hello Suzanne

My husband has had a nephrostomy tube for 6 months and had it removed last Wednesday.  He did find it uncomfortable sometimes depending on which Nurse changed the weekly dressing, but he just made another appointment to have it dressed properly.  His main complaint was that he couldn't play golf with it.  Otherwise he eventually got used to it, which I am sure your mum will.

Forgot to say in my previous reply that my husband is 81 and has been treated for bladder cancer.

Hi Flo,

Thanks for replying. That sounds encouraging. Hope your husband is doing well.

Mum would like to know about the weekly support from the nurses. Was it provided by the NHS?

Best wishes,

Suzanne

Hi Suzanne

Thank you - my husband is definitely improving but it all takes time.

The dressing was changed weekly by a Nurse at our Surgery and if, after a couple of days, the dressing felt uncomfortable they would always fit him in to have it re-dressed.  It only happened a couple of times so please tell your Mum not to worry.

His MacMillan cancer nurse is always very helpful and reassures him when he is worried about something.  

Hope your Mum's treatment is successful.

Kind regards