Bladder cancer support groups

You could try fightbladdercancer.co.uk or actionbladdercancer.org.uk to look for local support groups. There are also some urostomy groups (via Urostomy Association  https://urostomyassociation.org.uk ) for those who have had bladder removed. It's also worth asking at your local hospital - once you have a consultation about treatment, you will probably be assigned a specialist nurse who should know what is in your area. Best wishes.

Thankyou Teasswill!

I've found it really hard to find other avenues to what Im looking for!

I'm going to ask my CNS too on my first appointment with her.

I'll definitely check out your suggestions too!

Happy Easter and much love!

Hi Kitty.cs, a good CNS is the best possible support. They know the specifics of your case and can smooth the hospital path. I really hope yours will be a total magic marvel like mine. I bet there will be a Brighton local support group, we even have one in deepest Devon, though rather far for me to drive to these days. Sending you love and support at this difficult time. It happened to me nearly 8 years ago and I'm still here.....currently eating a dark chocolate Easter egg

Thankyou Herothedog!

It means a lot that there's peeps here to ask and understand what's going on!

Thanks for the support!

Hi, you could ask the Macmillan helpline re groups.  I know that there is a bladder cancer group at the Macmillan Centre in UCL hospital in London which meets monthly I think and that people can access it online if that helps. I have been treated at UCLH but have never attended it because the timing doesn't work for me.

Good luck

Hi.

Thanks, I will do!

Brighton hospital has a 'Macmillan horizon centre' right by it so that was my next port of call.

Fingers crossed they have something available too!

Thanks again everyone for all the tips and ideas!

They've been really helpful and appreciated.