Urology phone appointment

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I had a urology phone appointment yesterday.The urologist thinks the dilation of my kidneys is a result of the cystectomy.He didn’t seem bothered about it but said I can have an ultrasound in May.The next CT scan will be in November and then he wants to move onto yearly scans.He wasn’t interested in how I was feeling and says it’s nothing to worry about at this stage.I don’t feel listened to or reassured.Very fed up.Jane xx

Denby over 3 years ago in reply to Kiko

Please see my post on t'other thread. Go Mitomycin, could be?

Denby

Kiko over 3 years ago in reply to Denby

Hi Denby

How do I get onto the other thread to read about mitomycin please ? X

Kiko

Denby over 3 years ago in reply to Kiko

THis was what I put in the On Valentine's Day thread. Hope it helps, Denby

Denby 23 hours ago in reply to Kiko

Sorry having been away if I am out of order here, but have you asked your consultant if it would be appropriate for you to try Mitomycin? When my OH had a recurrence after BCG they let him try this and it's worked so well , though ovbiously everyone's different, that he still has his bladder and all. He was originally PTa G3 and a jolly lot of them too.

Denby

winkers60 over 3 years ago in reply to winkers60

My appt letter for scan is dated the day after I spoke to the urologist so perhaps he has taken it more seriously after all.I have been feeling excessively tired since this kidney problem was found but obviously I’m under a lot of stress which won’t be helping.It will be interesting to see whether anything has changed since the previous scan.Love Jane xx

Kiko over 3 years ago in reply to winkers60

Hope all will be well! X

Kiko

winkers60 over 3 years ago in reply to Kiko

Thanks.I wish I had been referred back to Bristol really.How are you ? Xx

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Urology phone appointment