Morning all. I'm new to this group. My husband has been diagnosed with small cell bladder cancer and is due to start chemo soon. It seems its a rare cancer to have in the bladder. Has anyone else any experience of this? Thanks.
You'll do fine. Take everything they offer, especially the anti sickness. My lesson learned, is keep taking the maximum a day, all the way through. You will always be able to get more and, feeling queasy challenges your sense of humour pretty thoroughly!
Hi Billy1955,Welcome to this friendly group.I hope you find it helpful.How are you finding your recovery since the cystectomy ? I expect you are still tired it takes a few months to really recover.Best wishes for your chemo.Jane
Hi, yeah I’m getting over operation fairly well, lost about 15kgs in weight had some problems with constipation and diahorrea in weeks following operation but beginning to level out now , still a little stomach pain but expected that as I also have Crohn’s disease and my medication was stopped for 6 weeks so fairly inevitable I was going to have a Crohn’s flare up.
Managing the urostomy bag fine and it’s a great relief being able to go out and not having to park where I know there are toilet facilities to hand
Hi,it sounds like you are doing ok.I hope you are back on the Crohn’s medication.Weight loss is common and so are bowel problems.My bowel stopped working but luckily I was still in hospital so they put in a nasal gastric tube.
Mike had the same chemo, he's somehow managed to hang on to his hair! Very thin now but he did have a good head of hair.
He's back in hospital.after a difficult weekend with a lot of pain and a very swollen leg - turns put he has a blood clot. So he's been pit on thinners and he had MRI scan yesterday. Oncologist looking at best options and wants him to have 5x radiotherapy as a palliative measure but I suspect more chemo will follow.
