For the past 3 years I have been peeing way too much. About 8 times per night and 1 time per hour all day even when not drinking alot of water. I have a weak stream and it takes me about 21 seconds to pee it all out at that pace. If I drink the amount of water I'm supposed to drink per day I will pee about 2 to 3 times per hour. My symptoms started over 3 years ago but 11 months ago I had a cystoscopy which showed inflamation. I was scheduled for a a CT scan which came out clear and cytology which came out clear and a second cystoscopy which I didn't get a chance to go. Before I was able to get the scope I lost my insurance. In the past month I had a 24 hour urine collection that showed trace blood. (that was the first time ever showed trace blood in urine). I had my follow up cystoscopy finally today and it showed a small red mark that looked like a thin flat upside down redish triangle. I asked him if it could be interstitial cystitus and he said he doesn't think so because other wise It would be more spread out. I asked him if it could be cancer and he said it could be but he won't know anything until the biopsy.The dr scheduled me for a biopsy. I'm really scared. I'm male and I'm only 43. I have a 12 year old daughter that depends on me and her mom is mentally I'll so my daughter needs me here at least until she's old enough to have a good job and care for her self. I know I just need to wait till I get my biopsy to know for sure but I am stunned right now. What is the chance that a focused, flat red patch like that is not cancer? I'm feel like I'm floating in limbio right now. Is there hope that I don't have bladder cancer? And if it's not, what could cause a red spot like that in my bladder along with all of these symptoms? I already have health anxiety being a registered nurse so I'm having a hard time coping.
Started feeling like I was beginning to lose my voice a month ago which is still persisting. I do have Gerd so I hope that's all it is. I've been taking pepsid for 2 weeks and I think it might be helping a little bit. Woke up this morning because it was hurting a little to swallow. I gargled with warm salt water and it stopped hurting. Have small light white spots in the back of my throat on the left side. No fever but I do feel a little sweaty. And I'm not sure but I think I have swollen glands in my neck so I'm at an urgent care waiting to see a Dr to check it out.They still haven't scheduled my appointment for the biopsy. My new insurance became active today but still waiting for the appt to be scheduled. I'm trying my best to distract my self but I'm still so very worried. I keep thinking that if my bladder was light inflamation a year ago and on my last scope 2 months ago it was a red mark, but my frequent urination started 3 years ago that means that if I have cis (because if it is bc cis presents as a red patch) that would mean that I had high grade for 3 years. So to shorten this what if my swollen glands and my voice problems are related. I read online that cis can travel fast. I've also been feeling very low energy but I am also very worried and depressed so I guess it could be that. My daughter keeps telling me that she only wants to live with me and that she's scared of her mom. I just recently won primary custody of my daughter but she still stays with her mom 3 days per week. I have to be in this world long enough for my daughter to get settled in life as an adult. She's only 12. My urologist said 9 out of 10 times it's just inflamation and that cis is very rare especially for people my age (43). I read many stories about people my age and younger with bc but every story these patients had visible blood in their urine. I've never had visible blood just trace amounts and just one time. None of the younger cases I've read about had cis. I'm really just venting and getting this all out. I just can't stand the thought that the day of my biopsy I will go to sleep and it's going to feel like a second passed and I'll be awake with the answer of if I will possible not be here soon or not. Is bc honestly rare at my age or is that just false information? My last question is if I did have incurable bc wouldn't I have had visible blood in my urine at least one time? And wouldn't my symptoms be much more severe? Because I have no pain all that happens is I urinate too much and I've been losing my voice for about a month. I know no one here is medics but I trust all of you much more that stories on the internet or even my own urologist.
I think it's only natural that in your state of heightened awareness, everything out of the ordinary seems suspicious. Unlikely that throat problem is related to BC & I think what your urologist says is right. I know that you won't feel any less worried until you have had the biopsy & results (you may have a further wait while the path lab examines the biopsy). So do share your worries here if that helps. Best wishes.
I need to talk to someone over the phone. how to I call macmillan from the US?
My biopsy is Tuesday. They said my copay is $1000 dollars. They said I also have to satisfy a $8700 yearly out of pocket cost before insurance covers 100%. I work pay check to pay check. I know that there is a chance that I don't have bc but how would I possibly be able to afford treatments if I did need them? The surgery center just called me and told me about these extra expenses that the insurance company never told me about.
Hi Scorp111278 . You can call the Support Line on +44 207 091 2230 from overseas, but there will be phone charges. I hope you get some answers. Best wishes.
My biopsy is Tuesday. I just pray that they tell me it's nothing or it's highly treatable. Please give me some words of hope that I can read again and again before Tuesday. I just keep saying in my mind that I've never seen visible blood, there is no pain, my cytology was negative twice.
I can't better Old Bob's recent posts if you want to look them up Scorp111278. Even with the paid health system you have I think docs would have hurried up more if they thought it was really bad.
Do those breathing exercises and get out in the fresh air, you will only risk harm to your own health if you let fear stop you breathing properly, and outdoors reduces stress.
Best wishes,
Denby
Tomorrow is the biopsy. I've been reading various posts from people scared about a red patch found on initial cystoscopy like me and they turned out to be inflamation. I've also found some studies reguarding red patches and a majority of them were found to be inflamation. In one study none of the red patches found in patients under sixty were found to be cancerous. I'm trying to go into this more positive but certain things still weigh on me like my new urologist said that my original urologist said that he saw the growth on my bladder (growth?) I saw it on camera too and to me it looked like a flat red mark. Is a flat red mark sometimes referred to as growth? Did he just use poor wording? Did he see something closer that I didn't notice? I don't know. My mom is the one who is taking me tomorrow and she is so scared that she can barley function. The hardest part is that right now any possibility exists and that's what's so scary. But my current state is I've been drinking more water but actually using the rest room less than before. Also I still haven't seen visible blood in my urine but I have had a very slight ache in my bladder here and there but only very sporadically. Thank you to everyone on here that has been here for me. I hope all of you are doing well and hope that more of your continued positivity rubbs off on me.
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