Disappointed

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Hello Everyone 

Just back from Hospital where I had my latest flexible cystoscopy. I had a different consultant today. He pointed out what looked like small white feathers in my bladder. He suggested I come back in a few weeks for a rigid cystoscopy so that the team could remove said feathers. Following my previous flexible cystoscopy I began having  occasional periods of slight bleeds when I urinated. I was prescribed Finasteride 5 mg daily because my cancer nurse said I was suffering from a vascular problem in my prostate as a result of the chemotherapy and radiotherapy treatment I had when I was first diagnosed. I asked the consultant today what were his thoughts on what he discovered today. He said we will wait and see.mmmmm!

Has anyone in the Group experienced “white feathers” in their bladder or can offer an explanation? My first thought was recurrence of the cancer. 

Keep safe 

Garviv

  • Hi . A bit of a worry, but these things like to keep us on our toes. I had something similar at a flexi a couple of years back. A small patch which looked like bits of flaky skin fluttering in the breeze. The doc wasn't sure and as an afterthought, should have taken a picture to discuss with colleagues, but too late. Rather than a TURBT, she booked me in for a follow up flexi in 3 weeks. It turned out to be 5 weeks, but when they went in, all was clear. No sign of the dodgy bit. A mystery, but thankfully all good. Nothing similar since. Hope it is something as innocuous for you. Best wishes.

    Best wishes to All,   rily.

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  • Thanks Rily, Yes a little set back. Hopefully get my date for rigid cystoscopy soon. It’s the uncertainty that is frustrating.

    Garviv

  • Good luck! As Rily said, not necessarily something to worry for now ... growth and reoccurrences are normal. I have a checkup Wednesday (rigid cystoscopy + biopsies) and I am very prepared to hear that they removed / found a new growth. I will be celebrating a lot if they do not find anything, and "just" celebrating if they find a new growth. In this case, good they found it and did something about it. The important part is that we are caught in time. Before it has spread too much. After, we are "in the system" and we are going to be looked at and checked up frequently. I read of someone on this forum having had more than 10 TURBTs in a few years. And then ... the all clear! So, do not worry too much! 

  • Fingers crossed for you Garviv. Whatever feathers turn out to be at least your team are on it. Hope the date comes quick. I've had so many both flexi and rigid I know the number and name of the booking clerks. I even chat to one of them about camping holidays Slight smile  I wait a couple of weeks and then phone up and chase politely. x

  • Hi Garviv,I hope your appointment comes through quickly and that it is nothing to worry about.Best wishes Jane

  • Thank You for your positive reply. Of course you are right. We are in the system and get regular checks.I was just feeling sorry for myself. Thank you again. Garviv

  • Thank you Jane. I have just received a text from the waiting list office letting me know if I have any allergies, holidays booked etc.... looks like I will get my date soon. Stay safe Garviv

  • Thank you Herothedog. I was feeling a little disappointed. However, you and others on this BC blog have restored my faith. God bless you all. Stay safe Garviv

  • That seems promising.Let us know how you get on.Jane x

  • Whatever is is or isn't Garviv, we shall all face it together Wink