T1 G3

Hello and welcome to the group. Sorry to hear you have had a recurrence, but we know this is not uncommon. Some people have another TURBT to remove it and try again with BCG or Mitomycin treatment. Others opt to go for bladder removal. It is a personal choice. You should have a meeting with your consultant to discuss the best for you. Many people here have had bladder removal and some with neo bladder. I am sure others will be along to share experiences. Best wishes.

This is a common dilemma. The chance of cure diminishes with recurrences, so you have to weigh up how much of a gamble it is & consider your priorities. Some people wish to hang on to their bladder as long as possible, whatever the risk, others prefer to go for surgery while a cure is still a possibility. 

If you go for surgery, you do have to be aware that neo might not be feasible. Nerve sparing is an issue if it's stoma or neo. I'm female, so a bit different, but I do know of men who have had a good result, or use alternative means to address erectile dysfunction post op.. Neo is tough at first, with likely incontinence during the training period, but in the long run it's low maintenance. I had mine 10 yrs ago & am very happy with the outcome.

Happy to answer any questions as best I can.